Some Issues Raised:
-
Advance Directives
-
Clinical Judgment
-
DNR
-
Demands for Treatment
-
Futility (Physiological
vs.
Personally-determined)
-
Negotiation of Treatment Options
-
Patient Values
-
Self-Determination
-
Terminal Condition
Howard Russell is 34 years old and was diagnosed with AIDS when
he became symptomatic in 1993. Ordinarily persons with AIDS will live about
21 months after they become symptomatic. Mr. Russell has lived 30 months.
However, he is nearing the end. He is in the hospital and suffering from
another infection and poor nutrition. He is being given antibiotics which
are temporarily controlling the infection and he is being tube-fed. The
prognosis is that he will not leave the hospital, the tube feedings will
have to continue, the antibiotics will be useful for only a limited time,
and there is a good chance that he will experience cardiac arrest in a
short period of time. Upon admission, Mr. Russell agreed to a DNR order
but after one week, he requested that the DNR order be reversed and that
he be made a full code. His change of mind occurred when his partner returned
from a business trip to Montana and discovered that Mr. Russell had been
hospitalized. His partner reminded Mr. Russell that, in their many conversations
about the disease which threatens him they had agreed that they would not
allow him to succumb to the disease voluntarily; that they would fight
against the disease as long as they possibly could and that they would
never surrender to it. There is no question about Mr. Russell's decisional
capacity. His physician and the medical staff think that a full code is
inappropriate because of his failing condition. Their assessment is that,
even if he were to survive the code, he would end his few remaining days
on a ventilator. They admit that there is some chance that Mr. Russell
might regain consciousness after being resuscitated even though he would
be on a ventilator.
Some Discussion Questions:
1. How should a physician handle a situation where the patient changes
his mind?
2. Is Mr. Russell being realistic in his assessment of his situation
and his life goals?
3. Is there room for negotiation between the residents and Mr. Russell
about therapeutic interventions which are futile?
4. Would a unilateral DNR order be appropriate in this case?
5. In what way is Mr. Russell experiencing a particular vulnerability
as a patient?
6. Is Mr. Russell's partner a help or a hinderance as Mr. Russell
is approaching his final days?
7. Are Mr. Russell's virtues as a patient of any help to him in
making his end-of-life decisions?
8. What principle(s) of bioethics [autonomy, beneficence, justice,
paternalism] do you think should govern this case?
9. How might the approach of feminist ethics be a help in this case?
10. What strategies would you implement to bring this case to a
resolution which maximizes the well-being of the patient?
11. How might an ethics consultation
be helpful in resolving the disputes in this case?