Race, Health Care and the Law 
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Institutional Racism and Health

 

Vernellia R. Randall
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RACIST HEALTH CARE:
REFORMING AN UNJUST HEALTH CARE SYSTEM 
TO MEET THE
NEEDS OF AFRICAN-AMERICANS

Vernellia R. Randall(*)
3 Health Matrix 127-194 (Spring, 1993)
Copyright (c) 1993 Health Matrix: Journal of Law-Medicine; Vernellia R. Randall

III.         INSTITUTIONAL RACISM AND AFRICAN-AMERICAN HEALTH STATUS 

Racism is both overt and covert, it takes two closely-related forms: individual whites acting against individual blacks, and acts by the total white community against the black community. We called these 'individual racism and institutional racism'. The first consists of overt acts by individuals, which causes death, injury or the violent destruction of property. The second type is less overt, or more subtle, less identifiable in terms of specific individuals committing the acts. But, it is no less destructive of human life. The second type originates in the operation of established and respected forces in the society, and thus receives far less public condemnation than the first type. 

When white terrorists bombed a black church and killed 5 black children, that is an act of individual racism, widely deplored by most segments of the society. But, . . . [when] black babies die each year because of the lack of proper food, shelter, and medical facilities, and thousands more are destroyed and maimed physically, emotionally, and intellectually because of conditions of poverty and discrimination in the black community, that is the function of institutional racism.(80)African-Americans are sicker than European-Americans.(81) Knowing that African-Americans are sicker than European-Americans does not explain why. It certainly does not indicate the presence of institutional racism. To understand the role of institutional racism in health status requires an understanding of how health status is determined. 

Many things affect health status. An individual's personal lifestyle choices affect health status because they affect an individual's personal behavior and psycho-social health, which affect his or her physical health. Physical environment and biology also affect health status. Health care institutions affect health status because both personal behavior and human biology are affected by an individual's access to health care, and by the quality of health care the individual receives from health care institutions.(82) Class theory maintains that the primary factor affecting differences in health care status between racial groups is socioeconomic.(83) According to the class theory, socioeconomic class affects life-style, psycho-social behavior, personal behavior, human biology, physical environment, access to health care, and the behavior of the system and its institutions toward the individual.(84) According to the class theory, it is lack of money, not racism, that explains the disparity in health. 

Certainly, access to health care services is related to ability to pay, and ability to pay is related to access to health insurance. It is estimated that 37 million Americans are uninsured.(85) The spiraling costs of health care and health insurance make it impossible for many individuals to afford to purchase either privately. And yet, only about half of the poor meet government assistance programs' eligibility requirements.(86) Many African-Americans are unemployed or employed in jobs that do not provide health care insurance. Many African-Americans are above the poverty line, disqualifying them for government assistance programs. Other African-Americans, approximately 25%, fall between the cracks, uninsured, without government assistance and without equitable access to health care. Consequently, many policy makers are suggesting health care reform proposals designed to minimize the effect ability (or inability) to pay has as a barrier to health care.(87) Even if any of the health care reform proposals are successful, the effect of socioeconomic class on health status will not be eliminated. In fact, its major effect will still exist, since socioeconomic class will continue to affect personal behavior and psycho-social health, physical environment, and human biology. Nevertheless, theoretically, access to health care will no longer be based on economics and ability to pay. If one accepts the class theory, then one must believe that establishing a universal health insurance will minimize the impact of class on health care access and should result in improved health for African-Americans. 

The class theory, however, oversimplifies the issue and completely ignores the independent role of race in American society.(88) Race influences not only life-style, personal behavior, psycho-social behavior, physical environment, and biology, but also socioeconomic status. Thus, race has a double influence. 

Racism in America establishes separate and independent barriers to health care institutions and to medical care. Those who advocate for the class theory ignore the fact that removing economic barriers does not remove racial barriers. Racial barriers to health care are exhibited in two areas. First, institutional policies based on race establish barriers to access to health care to African-Americans. Second, practitioners provide disparate medical treatment to African-Americans based on their race which is not related to their socioeconomic class. 

 


A.       Racial Barriers to Access 
It is hard to separate the effects of discrimination from those of concentration of Negroes in those areas where medical facilities are not easily accessible and in those income brackets that do not permit the purchase of medical facilities in the competitive market. Discrimination increases Negro sickness and death both directly and indirectly and manifests itself both consciously and unconsciously. Discrimination is involved when hospitals will not take in Negro patients; or when--if they do permit Negro patients--they restrict their numbers, give them the poorest quarters, and refuse to hire Negro doctors and nurses to attend them. . . . Ill health reduces the chance of economic advancement, which in turn operates to reduce the chance of getting adequate medical facilities or knowledge necessary for personal care.(89)Discrimination in health care has its foundation in the historical relationship between African-Americans and southern medical institutions. As slaves, African-Americans were perceived as property.(90)While slave owners attempted to protect their own economic interests by providing minimal health care, most left the slaves to live or die as fate might befall them.(91)After the Civil War, the Bureau of Refugees, Freedmen and Abandoned Lands (Freedman Bureau) was instituted to "furnish supplies and medical services" to the former slaves.(92) However, the Freedman Bureau had very limited effect in providing services to former slaves. In fact, the Compromise of 1877 effectively ended the period of Radical Reconstruction which had been an attempt by the nation to make affirmative efforts in helping African- Americans.(93) During the Post-Reconstruction era, African-Americans were excluded from health care either by prohibition or discrimination.(94) [Even] where segregation and discrimination [were] not required by law they became deeply ingrained in the mores. Such behavior became part of the American Way of Life' . . . . (95) This "way of life" remained visible until the Civil Rights Movement of the 1960s.(96)After the 1960s, health care institutions either fled predominant African-American communities or instituted policies which resulted in limited access for African-Americans.(97)Discrimination can take two forms. Discrimination can be based on racist conduct that is intentional or it can be based on conduct which, although not intentional, nevertheless results in a disproportionate disparate impact on African-Americans. Much of the institutional racism has historically moved from intentional conduct to unintentional. While this classification may offer a distinction when assigning fault or culpability, the classification makes little difference to the African-American feeling the adverse affects of discrimination. 

This legacy of a racist health care system persists today in African- Americans who are sicker than European-Americans and who continue to experience racial barriers to access. Racial barriers to access can be divided into three major groups: barriers to hospitals, barriers to nursing homes, and barriers to physicians and other providers. 
1.      Barriers to Hospitals 

The institutional racism that exists in many hospitals manifests itself in a number of ways including the adoption, administration and implementation of policies that restrict admission;(98) the closure, relocation or privatization of hospitals that serve the African-American community;(99) and the transfer of unwanted patients (known as "patient dumping") by hospitals and institutions.(100) 

ADMISSION RESTRICTIONS. Many hospitals discriminate by using patient referral and acceptance practice standards that limit access. These practices restrict the admission of African-Americans to hospitals.(101)Discriminatory admission practices include: 

 

 


 

 


 

 


 

 

bullet. Layoffs of recently hired African-American physicians - where those African-American physicians admit most of the African-American patients served by the hospital;(102) 
bullet. Not having physicians on staff who can accept Medicaid patients;(103) 
bullet. Requiring pre-admission deposits as a condition of obtaining care;(104) .
bulletRefusing to participate in programs to finance care for low-income patients not eligible for Medicaid;(105) and, 

  • . Accepting only patients of physicians with staff privileges when the patients of such physicians do not reflect the racial composition of the local community.(106) 
Such practices may have a devastating effect on African-Americans. The practices may banish African-Americans to distinctly substandard institutions treating mostly minority groups. They may completely prevent care where African-Americans have no access to other sources of care. 

COMMUNITY AVAILABILITY. Racial barriers to health care access are based, in large part, on the unavailability of services in a community. Increasingly, hospitals that serve the African-American community are either closing, relocating or becoming private. In a study done between 1937-1977, researchers showed that the likelihood of a hospital's closing was directly related to the percentage of African-Americans in the population.(107) Throughout the 1980s many hospitals relocated from heavily African-American communities to predominantly European-American suburban communities.(108)This loss of services to the community resulted in reduced access to African- Americans. Geographic availability and proximity are important determinants to seeking health care services early. If African-Americans fail to seek early health care, they are more likely to be sicker when they do enter the system; and the cost for the patient to receive service and for the system to provide services at that point is likely to be greater than at an earlier state. Therefore, not only does the loss of services significantly increase health care costs to African-Americans, but also, it increases health care costs to the society in general.(109)Another devastating trend that affects the access of African-Americans to health care is the privatization of public hospitals. Quite a few hospitals (public and non-profit) have elected to restructure as private, for-profit corporations. As public hospitals, many were obligated to provide uncompensated care under the Hill-Burton Act.(110) As private hospitals, these institutions are most likely to discontinue providing general health services to the indigent populations, (111)and essential primary health care services to serve African-American communities.(112)The problem of limited resources is not new and has plagued the African- American community since slavery. Historically, African-American communities attempted to address the problem by establishing African-American hospitals. At one point there were more than 200 African-American hospitals in the United States. African-Americans relied on these institutions to "heal and save their lives."(113)Now, these institutions are fighting for their own survival. By the 1960s, only 90 African-American hospitals remained. Between 1961 and 1988, 57 African- American hospitals closed and 14 others either merged, converted or consolidated. By 1991, only 12 hospitals continued to "struggle daily just to keep their doors open".(114)As a result of closures, relocations, and privatization, many African-Americans are left with limited, if any, access to hospitals. 

PATIENT DUMPING. An African-American seeking care at a private hospital faces the possibility of being "dumped", that is, the hospital may transfer an "undesirable" patient to a different facility.(115)The transfer is medically appropriate only when the care required is not available at the transferring hospital. However, many transfers are for economic reasons, i.e., the patient was either uninsured or unable to make admission deposits.(116)African-Americans are disproportionately affected by these practices.(117)In 1986, Congress passed the Emergency Medical Treatment and Active Labor Act which became effective as Section 9121 of the Consolidated Omnibus Reconciliation Act (COBRA).(118)The Act provides a cause of action against hospitals that "dump" patients with emergency conditions from their emergency rooms, or who "dump" pregnant patients in active labor.(119)Several states have make "patient dumping" illegal.(120)However, limited enforcement of these legislative enactments makes patient dumping an ongoing problem. For instance, as of October 30, 1990, only 530 facilities had been investigated;(121)only 139 facilities were found in violation of the statute;(122)and only five facilities actually lost their Medicare contracts.(123)A high percentage of African-Americans are uninsured or under-insured.(124)Consequently, patient dumping continues to be an issue that plagues African-Americans. Furthermore, hospitals have developed methods to dump the patient without invoking the statute. For instance. the statute provides that hospitals receiving federal funding must accept any patient who "comes to an emergency room." If hospitals reroute the patient before the patient arrives then the statute will not apply.(125)In Johnson, a parent called the paramedics after her baby went into cardiac arrest.(126) The paramedics contacted University of Chicago hospital.(127)The hospital told the paramedics to take the child to another hospital even though it was only five blocks away.(128)The child was taken to a hospital without a pediatric intensive care unit and had to be transferred to another hospital.(129)The child died after admission to the second hospital.(130)The plaintiff sued on common law claims and for violation of COBRA. The district court dismissed and the Seventh Circuit upheld the dismissal of the COBRA claim.(131)The Seventh Circuit noted that "In accordance with the plain meaning of the statutory language, we do not believe that the infant ever 'came to' the hospital or its emergency department. For purposes of COBRA, a hospital-operated telemetry system is distinct from that same hospital's emergency room."(132)The court went on to acknowledge that a ". . . hospital could conceivably use a telemetry system to dump patients"; nevertheless, the court held that the "statute does not expressly address the question of liability in such a situation."(133)Thus, the Seventh Circuit leaves the door open for other hospitals to continue dumping patients, most of whom will be African-Americans. 
2.      Barriers to Nursing Homes 
Nursing homes(134)are the most segregated publicly licensed health care facilities in the United States. Smith, in his study, concludes that racial discrimination is the major factor explaining that type of segregation.(135) It has been suggested that any difference in African-American use of nursing homes can be explained by cultural biases against using nursing homes as care source for disabled or aged family members.(136)However, in some areas (such as Delaware and Detroit Metropolitan) African-Americans make up a higher portion of nursing home residents than European-Americans. This suggests that African-Americans do not consistently decide against nursing homes.(137) Furthermore, even where racially neutral policies exist, institutional racism is still a factor. For instance, evidence about the use of nursing homes under Medicaid demonstrates that institutional racism has an impact even without regard to economic class.(138) For instance, although African-Americans constitute only 12% of the nation's total population, the African-American poverty rate (31%) is three times greater than the European- American poverty rate (10%).(139)However, African-Americans constitute only 29% of the Medicaid population and 23% of the elderly poor.(140)Medicaid expenditures for African-Americans are only 18% of total expenditures.(141)If, indeed, African-Americans are sicker, then Medicaid expenditures for African-Americans should at least be equal to, if not greater than, the percentage of Medicaid's African-American population. It is this combination of under-representation and under-spending in Medicaid that suggests racism. 

In part, this disparity in expenditure is based on the limited access that African-Americans on Medicaid have to nursing homes, both intermediate and skilled nursing facilities.(142)Only 10% of Medicaid intermediate care patients are African-Americans.(143)Similarly, only 9% of Medicaid skilled nursing care facilities' patients are African-Americans.(144)This disparity may be due in part to a policy allowing limited bed certification. Under limited bed certification, nursing homes determine the number of beds that are certified to participate in Medicaid. Federal regulations permit a distinct part of intermediate care facilities to be certified.(145)Some states will certify a limited number of beds.(146)Thus, the certified portion of a facility need not contain all intermediate care facilities residents.(147)Furthermore, some states will certify beds which are not in a separately administered unit of a facility, but are instead part of a wing or ward that also contains non-certified beds.(148)Limited bed certification programs allow nursing home operators to give preference to private pay patients by reserving for their exclusive use beds which are unavailable to Medicaid patients.(149) It also allows the nursing home operators to change the bed certification, resulting in disruption of the care of Medicaid patients by displacing them after they have been admitted to a nursing home.(150)Displacement can occur in several ways. It occurs when a patient exhausts his or her financial resources. The patient needs to make a transition from private pay to Medicaid.(151)At that point, a patient may be told that his or her bed is no longer available.(152)Furthermore, displacement occurs when a patient with insurance (private, medicaid or medicare) is transferred from a skilled nursing facility to an intermediate care facility. If the insurance will not cover intermediate care, the patient may not have financial resources to continue obtaining nursing home care. (153) Similarly, displacement can occur when a patient already on Medicaid and authorized to receive skilled nursing care is reclassified for intermediate care only.(154)A nursing home can manipulate the availability of nursing home beds by certifying (and decertifying) beds. This certification and decertification process limits access to minorities. Linton v. Carney(155) effectively challenged the practice. 

In Linton, Mrs. Linton was threatened with an involuntary transfer from the facility she occupied. The threatened transfer was due to a change in her classification status by the Tennessee Medicaid program.(156) Although Mrs. Linton occupied a bed in the nursing home certified for her new classification, the nursing home threatened to decertify her bed.(157) No other beds were available in the facility.(158)Joining Mrs. Linton (as a plaintiff- intervenor) was Mrs. Carney. Mrs. Carney was an 89-year-old African-American who could not find an available nursing home in the state of Tennessee.(159)The District Court found the limited bed certification policy to violate both Title VI of Civil Rights Act and the Medicaid statute.(160) The Linton court recognized that Title VI prohibits policies and practices with adverse disparate impact on ethnic and racial minorities.(161)According to the court, the plaintiffs showed that the defendants' limited bed certification policy had a disparate impact on racial minorities.(162)While the defendants argued the "self-selection preferences" of the minorities adequately explained the disparate impact(163) the court rejected that interpretation as "sufficient justification for minority under-representation in nursing homes."(164)Therefore, the defendants did not meet their burden of proof.(165) Linton demonstrates that health care programs can operate in a racist way despite the appearance of racial neutrality. Any reform to the health care system that does not specifically address race has the potential of being racist and discriminatory. 
3. Barriers to Physicians and Other Providers 
Another important aspect of access to care is the availability of health care providers who serve the African-American communities.(166) It should go without saying that proximity increases utilization. At this point, data on the actual numbers of white physicians who have offices in the African-American community are not available. There are probably very few. Consequently, African-American physicians have been an important aspect of filling the availability gap. Without physicians and providers in their communities, African-Americans are likely to delay seeking health care. That delay can result in more severe illness, increased health care cost, increased mortality and increased costs to society. 

Given the increased morbidity and mortality among African-Americans logically one would expect more health care providers in their communities not fewer, and more African-Americans in health care fields. Scrutiny of the physicians heading in the Yellow Pages of any major city, clearly indicates that many physicians do not physically serve the African-American community. 

Furthermore, despite being 12% of the population, African-Americans are seriously under-represented in health care professions. Only 3% of the physicians in the United States are African-Americans;(167)only 2.5% of the dentists in the United States are African-Americans;(168) and only 3.6% of the United States pharmacists are African-Americans.(169) While this lack of representation is particularly significant for African-American communities which rely on African-American physicians for care,(170) it also impacts the entire community. Shortage of adequate care results in sicker individuals and an increase in overall health care costs. If African-Americans are sicker, they need more physicians, not fewer. Yet, we see the same limited availability of providers, as of hospitals, to service African-American communities.(171)The shortage of African-American professionals further affects health care availability by limiting African-American input into the health care system.(172)While the control of health care distribution is ultimately in the hands of the individual physician, that control is influenced and limited by law, hospital practices and policies, and the medical organization of the physician's practice. With so few African-American health care professionals, the control of the health care system lies almost exclusively in European-American hands. 

The result is an inadequate, if not ineffective, voice on African- American health care issues. This lack of African-American voice leads to increased ignorance on the part of European-Americans regarding issues pertaining to African-American health. When health care issues are defined, the policy makers' ignorance results in their overlooking African-Americans' health concerns. 

 


B.      Racial Disparities in Medical Treatment 
Racial barriers to access is only one aspect of institutional racism. Another aspect of institutional racism is the occurrence of racial disparities in type of services ordered and in the provision of medical treatment itself,(173) well-documented in studies done in cardiology, cardiac surgery, kidney disease, organ transplantation, internal medicine and obstetrics. 

Cardiology and Cardiac Surgery. African-Americans and European-Americans have similar rates of hospitalization for circulatory system disease. Yet, studies have found that European-Americans are one-third more likely to undergo coronary angiography(174) and two to three times more likely to undergo bypass surgery.(175)

Kidney Disease and Kidney Transplantation. The aggressive treatment of long- term kidney disease is based in part on race. Studies indicate that European- Americans are 5% to 15% more likely to receive aggressive treatment.(176) In fact, the most favored patient for long term hemodialysis is a European-American male between the ages of 25 to 44.(177) A European- American on dialysis is two-thirds more likely to receive a kidney transplant than a non-European-American. (178) While the likelihood of receiving a kidney transplant is related to income, the effects of income and race are independent from each other,(179) meaning that middle-income African- Americans are less likely to receive a kidney transplant than middle-income European-Americans. 

Internal Medical Treatment. The patient's race has been correlated with the intensity of medical treatment. For example, when hospitalized with pneumonia, African-Americans were less likely than European-Americans to receive intensive care.(180) This disparity in medical treatment persisted even after controlling for clinical characteristics and income.(181)

Obstetrical Treatment. African-Americans were more likely to be classified as "clinic" patients despite comparable ability to pay for care. Private patients were more likely than clinic patients to have caesarean sections.(182)This is true even though clinic patients were in poorer health and were more likely to have low birth weight babies.(183)

These studies all raise the issue that African-Americans receive health care treatment different from the "preferred" patient the European-American male. Whether this difference is based on individual prejudices or medical school training, it is evidence of institutional racism that cannot be tolerated. Any patient seeking care from a physician should be able to be assured of the most appropriate medical treatment available. Irrespective of race, each of us should be assured that the physician will act in our best interest. Every person should be assured that the physician will not let personal prejudice or medical prejudice influence our medical treatment. As the situation exists, an African-American does not have those assurances. 

 


C. Summary 
Race affects access to care independent of socioeconomic class. Race also affects medical treatment independent of socioeconomic class. While the disparities in treatment decisions reflect clinical characteristics, income, medical or biological differences, they also reflect racial bias.(184) To improve the health of African-Americans, it is not sufficient merely to remove barriers to access based on socioeconomic class. Health care institutions must rid themselves of institutional racism. 

Medicine has found cures and controls for many afflictions, improving the health of all Americans--African-Americans, Asian-Americans, Hispanic- Americans, Native-Americans and European-Americans.(185) However, the health institutions have failed to extend the same magnitude of improvement in health among European-Americans to African-Americans and other minority populations.(186) Health institutions have failed to eliminate the racial distribution of health care.(187)They also continue to perpetuate distinctions. Such a situation is intolerable. Of all the influences on African-Americans health, the influence of health care institutions, though relatively small, should nevertheless be free of racial prejudice and discrimination. 

 


IV.    HEALTH POLICY AND ELIMINATING THE HEALTH DISPARITY

This the American black man knows: his fight here is a fight to the finish. Either he dies or wins. If he wins, it will be by no subterfuge or evasion of amalgamation. He will enter modern civilization here in America as black man on terms of perfect and unlimited equality with any white man, or he will enter not at all. Either exterminate root and branch, or absolute equality. There can be no compromise. This is the last great battle of the West.(188) Institutional racism is a term that describes practices in the United States nearly as old as the nation itself. Institutional racism comprises those policies, practices, and activities which injure or damage an individual or group based on race. Like individual racism, the effects of institutional racism can derive from intentional or unintentional conduct. For African- Americans who face disproportionate morbidity and mortality, whether the conduct was intentional or not is irrelevant. When medical institutions' behavior sets up racial barriers to access and provides racially disparate treatment of African-Americans, and thereby injures those the institutions purport to help, the institutions are institutionally racist. 

African-Americans have not profited as much as European-Americans by the early advances of health care. In fact, the gap between African-American health and European-American health has widened over the last ten years. (189) Racism has adversely affected African-American health independently of other factors contributing to excess African-American morbidity and mortality. We have much to lose by its persistence. 

In 1992, the presence of institutional racism in a system dedicated to improving the life of all Americans is a powerful indictment of a system that offers part of its population what some consider the best health care in the world.(190)Despite having ultimate responsibility for providing health care for all Americans, despite a belief in this country that all persons have certain rights to life, liberty and health, the American health care institution has contributed to and perpetuated racism. 

What white Americans have never fully understood -- but what the Negro can never forget -- is that white society is deeply [racist]. White institutions created it, white institutions maintained it and white societies condone it.(191) For health care institutions to remove the blemish of racism, they must develop specific solutions. To bring African-American health on par with European-American health, we must design and implement a delivery system to effectively address the health issues of African-Americans. There are four policy/legislative positions that can be adopted (singly or in some combination).(192) First, the health care system, legislature or court can do nothing. The legislature (and courts) could continue to rely on the present system without specifically addressing issues relevant to African-American health. This position denies that the health care system perpetuates disparity among African-Americans and European-Americans. However, this position does provide a base measure against which other policy alternatives can be evaluated. Second, insurance coverage could be expanded. Expanding insurance coverage would theoretically remove economic barriers to health care. Third, based on those facts that suggest severe treatment disparity between African-Americans and European-Americans, special health services could be targeted to African- Americans. Finally, Title VI of the Civil Rights Act could be used to eliminate racist practices in health care delivery systems. 

Policy options are neither right nor wrong and can only be evaluated in the context of how well the policy satisfies other criteria. These policy alternatives can be evaluated using seven criteria: horizontal equity, vertical equity, economic efficiency, preference satisfaction, privacy, avoidance of stigma, and political feasibility. Horizontal equity seeks to treat equals as equals. For example, a policy proposal that targets services to all diabetic patients residing in the United States satisfies the criterion of horizontal equity, whereas a policy targeting all African-American diabetic patients does not.(193) Vertical equity is unequal treatment of unequals, trying to make them more equal. Vertical equity suggests that a good policy proposal is one that favors the have-nots over the haves in the distribution of benefits.(194) Economic efficiency is the use of resources to produce the maximum benefit for the smallest expenditure.(195)Preference satisfaction requires that a policy produce the most happiness for the greatest number of people, usually by creating options and allowing individuals to maximize their own preferences. Therefore, in selecting between alternate policy options, the policy which is consistent with people's preferences is favored.(196) One problem with preference measurement is that human preferences do change as a result of education and advertising. Therefore, weight given to preference satisfaction should be considered against the likelihood of the preference being changed. The privacy criterion stipulates that a policy should not allow intrusion into the life of the individual.(197)Avoidance of stigma means that individuals are not negatively labeled as different from other citizens not affected by the policy.(198) Political feasibility is the possibility that the particular alternatives have a chance of being adopted and implemented by the courts and legislature.(199)

 


A. "Do Nothing" Policy Option(200)
Horizontal Equity. In evaluating the different policy options, the "do nothing" option serves as a baseline. The existent system does not provide African-Americans who are ill with the same access as sick European- Americans; nor do African-Americans receive the same treatment once in the health care system. Consequently, sick African-Americans are not treated the same as sick European-Americans. The current system lacks horizontal equity. 

Vertical Equity. Doing nothing maintains the status quo and does not attempt to improve access or treatment services for African-Americans. African-American communities have fewer providers and medical institutions. African-Americans have disproportionate morbidity and mortality. Doing nothing does not address the unique needs of African-Americans. Doing nothing does not close the gap in health between African-Americans and European-Americans. Given the unequal access and unequal medical treatment, doing nothing makes no changes which, by treating African-Americans differently, would lead to equal health care. Therefore, vertical equity does not exist. 

Economic Efficiency. To the extent that the United States is already spending enough to bring every citizen high quality, high-technology care, economic efficiency is not met. Of the $817 billion that is spent each year on health care, it is estimated that $200 billion is spent on unnecessary medical care, overpriced procedures and inefficient administration.(201)Apparently, the current system is not economically efficient. Reforming the health care system to meet the needs of African-Americans will not be any more economically inefficient than the current system.(202) On the other hand, failure to reform the system will mean continued costs in African-American lives. This cost is one which will not only affect individual lives and the African-American community, but also the general society in lost productivity and additional health care expenses. 

Preference Satisfaction. Preference satisfaction requires that a policy produce the most happiness for the greatest number of people, usually by creating options and allowing individuals to maximize their own preferences. Whether preference satisfaction exists depends on whose perspective one considers. Certainly, for those who have access to the health care system and adequate treatment, doing nothing might allow them to maximize their own preferences. However, for African-Americans whose access to health care is limited and whose treatment is below standards, doing nothing would not create options or allow them to maximize their preferences. 

Privacy. The privacy criterion stipulates that a policy does not allow intrusion into the life of the individual. The current system maximizes an individual's privacy. Theoretically, the free-choice, fee-for-service, retrospective payment system currently serving much of the population, neither limits from whom an individual can seek services nor limits the services that a provider can render. Those enjoying limitless services are not required to disclose information to receive care. In this way, doing nothing maximizes the privacy of those with access to health care services; while those without access to services have no privacy issues, because they are excluded from participation. 

Stigma. Avoidance of stigma means that individuals are not negatively labeled as different from other citizens not affected by the policy. To the extent that doing nothing allows the gap in health between African-Americans and European-Americans to continue, it may cause some stigma. Individuals who believe that a major cause of illness and death is behavior may view reports of poorer health among African-Americans as evidence of poor health behavior. To some extent they are correct.(203)However, if European- Americans fail to acknowledge the role of the health care system, doing nothing results in a failure of the health care system to accept responsibility for its role in the health of African-Americans. It also leads to indirect blaming and negative labelling of African-Americans. 

Political Feasibility. Political feasibility is the possibility that the particular alternatives have a chance of being adopted and implemented by the courts and legislature. Maintaining the status quo is generally easier than making substantial changes. The likelihood that specific actions will be taken to improve the health of African-Americans seems slim, since little attention is being given the problem. 

Summary. The do nothing option allows for the social, economic, and health care disparity to continue to exist between African-Americans and European- Americans. Racial and economic barriers to access experienced by African- Americans would persist. Racial and economic barriers to entering the health care professions would remain. Doing nothing would be to insist on ignoring the racial disparities in medical treatment. This situation is untenable. The health of African-Americans clearly indicates that something needs to be done. 

 


B.    Expanded Insurance Coverage 
1.    Background
The United States and South Africa are the only major industrialized nations without a universal health insurance system that guarantees access to health care for all of their citizens. What the United States has instead of universal health care is a scheme of employer-financed insurance and government programs(204)that still leaves more than 37 million Americans without the financial resources to pay for health care.(205)The lack of health insurance is a particular issue for African-Americans who are less likely to have employer-financed insurance.(206) While public programs, such as Medicaid and Medicare, are important sources of health care coverage for many low-income and African-Americans, they do not reach all of the uninsured poor.(207) In fact, one-fourth (25%) of African-Americans have no source of health coverage.(208) Even more disturbing is that the number of uninsured African-Americans is increasing. In 1977, only 18% of African-Americans had no health coverage.(209) Furthermore, the gap between African-American uninsured and European-American uninsured is widening. For instance, while the proportion of uninsured non-elderly European-Americans increased only 3 percent from 1977 to 1987 (from 12% to 15%), the proportion of uninsured non-elderly African- Americans increased 7% (from 18% to 25%) during the same period.(210)Since private health insurance coverage is linked to employment, racial barriers to employment are one explanation for the significant difference in insurance coverage. For example, in 1990 the African-American unemployment rate was 240% more than the European-American unemployment rate.(211) Even where employed, the African-American is more likely to be in a lower paying job which does not provide employer-based health insurance.(212) Another factor affecting insurance coverage is the higher percentage of African-American families with only one adult.(213) Families with two working adults are more likely to have at least one adult with employer-based insurance.(214)However, while the absence of health insurance is much more likely with lower income, race is an independent factor affecting whether an individual will be insured. In fact, the racial difference in proportion of uninsured is most marked at higher incomes.(215) For example, poor/low income African- Americans are uninsured at about the same rate as poor/low income European- Americans; however, middle/high income African-Americans are almost twice as likely to be uninsured than higher income European-Americans.(216) Expanding insurance coverage so that everyone will have either employer-based or government-based insurance is one proposal for addressing the inequities in the health care system.(217)During the 102nd Congress, more than thirty proposals were introduced to expand insurance coverage and reform the health care system.(218) The proposals under consideration fell into five major categories: market-reform, employer mandate plus Medicaid, employer choice of Medicare or private, Medicare for all, comprehensive public plan. See, Table 11 below.  . Market-reform. Small group health insurance reform is a targeted approach to extend insurance to the working uninsured.(219) It proposes reforming the small group market to make coverage affordable and easier to purchase and to then sell private health insurance to small firms.(220)The reforms include: requiring private insurers to make coverage available to all firms, employees and dependents in the group, limiting pre-existing condition waiting periods for coverage, limiting variation of premiums based on group risk, limiting the extent to which premiums could be increased.(221)
TABLE 11: EXPANDED HEALTH INSURANCE OPTIONS(229)
2.      Policy Analysis(230)
Horizontal Equity. To the extent that expanded insurance coverage would provide economic access for all uninsured, it has horizontal equity. In essence, expanded insurance coverage treats equals (the uninsured) as equals. Therefore, options such as employer choice of Medicare or private insurance, Medicare for all, and comprehensive public plan, have horizontal equity. 

However, market-reform and employer-mandated plus Medicaid do not provide for coverage for all uninsured. For instance, market-reform options do not require the employer to contribute toward the premiums. Without employer contributions, many employees in low-paying jobs will not be able to afford the premiums. Furthermore, premiums may increase because of availability of coverage to high- risk, sick individuals who had been previously excluded by underwriting practices.(231) Therefore, under the market-reform option almost 40 millions persons will still be uninsured.(232)Similarly, employer mandate only covers two-thirds of the uninsured who are in families with a working adult. It excludes from coverage almost 7 million uninsured, such as part-time workers and older adults who are disabled or retire early and are not eligible for Medicare.(233) The groups (including those in low-paying jobs and/or part- time employment) that market-reform and employer mandate plus Medicaid will not cover would include high numbers of African-Americans. 

Vertical Equity. A system of universal insurance regardless of coverage fails to resolve the racial difference in access between African-Americans and European-Americans that is not related to insurance coverage. For example, European-Americans have better access to health care even when the insurance coverage is similar.(234)Expanding insurance would not increase community availability of either European-American institutions and providers or African-American institutions and providers. Nor does expanding insurance coverage address the issues of racially disparate treatment. In short, expanding insurance coverage does not address the issue of institutional racism. Consequently, expanding insurance coverage does not provide for vertical equity. 

Economic Efficiency. Whether expanding insurance coverage is economically efficient is highly debatable. Without cost controls, expanding insurance coverage could increase health care costs drastically. Historically, the existence of health insurance has played a significant role in increased health care costs. This is so because the insurer's method of reimbursing providers introduced into the health care system a "complex of irrational economic incentives".(235) In particular, the "fee-for-service basis"(236)system euphemistically called "the free lunch system," has delivered medical care without regard to cost containment, and sometimes without regard to medical necessity. Under fee- for-service, third-party payers pay health care providers for each discrete item of service. In 1980, 50% of active physicians were compensated by fee-for- service; approximately 20% were salaried and the other 30% received a mixed form of compensation.(237) Similarly, government programs (Medicaid and Medicare) reimbursed providers for most of their costs or charges incurred in treating covered patients.(238)Both reimbursement forms created powerful incentives to over-utilize the health care system.(239)In fact, no one had a rational incentive to economize. 

For example, a patient contracted for insurance through the employer for 80% of the usual, customary, and reasonable (UCR) cost of "medically necessary care." Therefore, the patient lacked the incentive to economize because no matter the charges, the patient only paid 20% of the cost.(240)Because the insurance premium was shared with the employer, the patient generally was not directly concerned with future premium increases. Even so, her individual health care choices did not directly influence her insurance premium, since insurers did not typically base health care insurance premiums on "experience rating." In this way the patient did not realize the full financial impact of her health care treatment decisions. 

Nor were hospitals and physicians motivated to economize. Because most third- party payors guaranteed providers 80% of their customary charges, fee-for- service or cost-based charges had an opposite and "perverse influence" on health service delivery.(241) Under both reimbursement systems, providers made more when they treated more.(242) This phenomenon had two effects. First, physicians and hospitals tended to de-emphasize preventive care, which was not as lucrative as treatment services. Second, providers tended to place excessive reliance on the use of medical technology because third-party payors paid for discrete procedures, not time spent with patients.(243)From the patient's point of view, insurance removed the need to ration health care dollars, creating a "moral hazard problem."(244) And, from the insurer's point of view, a payment system that had worked well for auto and life insurance seemed to make sense. In these ways, health care insurance was designed and implemented on the basis of faulty assumptions by all parties.(245) Extending health care insurance to greater numbers of persons could result in over-utilization unless serious cost containment measures, such as utilization review(246) and financial risk-shifting,(247)are introduced into the health care system. 

Neither the market-reform option nor the employer-mandated option is likely to contain substantial cost containment provisions. Small firms and private plans do not typically offer managed care products which provide the mechanism for serious cost containment. While some larger employers may offer managed care products, they represent a relatively small proportion of the newly insured since most larger employers are already covering their employees. There is potential for cost containment with the expansion of Medicaid, since it would extend its tight provider payment limits to a larger number of persons. However, those same payment limits might also act as a deterrent to provider participation which would then limit the actual availability of service. Therefore, expanding insurance is only efficient if the health care system is reformed to eliminate unnecessary medical care, reduce overpriced procedures, and improve administration. 

Stigma. While expanding insurance coverage will not necessarily stigmatize, actions taken to make it workable, that is, cost containment efforts, might lead to stigmatization. The stigmatization may be a result of individuals being treated differently based on the type and amount of coverage they have. Historically, the type and extent of coverage varies among individuals and groups, based on whether it is government or employer-based insurance. 

Even among employers, insurance varied among large employers with unions (such as General Motors) and smaller employers without unions. Further, regardless of size of employer, individuals employed in minimum-wage positions often have no coverage or minimal coverage with large deductible amounts. 

Government programs (such as Medicaid and Medicare) have had lower provider payment schedules and treatment guidelines, which discourage provider participation. In fact, many providers have refused to accept payment from policies that either do not make full restitution or that place restriction on their practices. Individuals who have these policies are likely to be labeled negatively by providers and institutions. Given that many African-Americans are employed in minimum-wage positions (or are covered by government insurance) they are likely to be stigmatized more by providers' refusal to accept certain policies. 

Preference Satisfaction. There is no indication that a generalized insurance program will allow for preference satisfaction for all participants. Preference satisfaction implies the ability to exercise choice in providers and treatment. To make expanded insurance coverage workable, patient choice might be limited to control cost. For example, many employers may adopt managed care plans as a mechanism of controlling cost. Managed care plans(248) control cost by having physicians act as "gatekeepers", limiting a person's access to certain treatment and to specialist physicians.(249)While expanding insurance coverage in itself will not limit preference satisfaction, the gatekeeping aspects of cost containment programs will. These attempts to have the physician become the gatekeeper to medical care will ultimately change the entire structure of the American health care system(250) and not necessarily for the better. The least articulate, least educated, least financially well- off person will have the most limits imposed by cost containment efforts. If cost containment efforts result in injuries, the poor and minorities will have to bear the cost of restricted access to services. The cost containment efforts that will be associated with expanding insurance coverage could potentially result in greater health disparity between African-Americans and European-Americans. This is especially true given physicians' propensity to treat patients differently based on race. 

Privacy. Expanded insurance coverage does not necessarily affect privacy. However, as in preference satisfaction, steps taken to implement the option may negatively affect a person's privacy. In order for governments and third-party payers to carry out utilization review and financial risk-shifting, they must scrutinize the treatment of individual patients. In particular, utilization review examines appropriateness of medical services to detect variations from the norm that point to unnecessary or inappropriate care.(251)When the third-party payer detects variation, either it does not pay the claim (retrospective(252) or refuses to authorize the provision of the service (concurrent and prospective(253)Each form(254) requires varying degrees of information about the individual. The plan which will most invade an individual's privacy is the one that employs prospective or concurrent utilization review because it requires information about a current illness for the purpose of denying care. 

Political Feasibility. Almost certainly, within the next four years some bill will be passed expanding insurance coverage. The only real question is what shape the reform will take. As noted above, the 102nd Congress introduced more than thirty proposals which include market-reform, employer mandate plus Medicaid, employer choice of Medicare or private, Medicare for all, comprehensive public plan. Given the extensive insurance lobby, it is not likely that a comprehensive public plan or a Medicare-for-all plan will be adopted since both those options would nearly eliminate the role of private insurance. The market-reform option, while the least intrusive into the current system, would also leave many individuals uncovered. Given the pain and agony that many are undergoing to change the system, leaving large numbers uncovered would be political suicide. The most likely reform is some combination of employer mandate plus Medicaid and/or employer choice of Medicare and/or private. While this would leave some individuals uncovered, it would provide the most extensive coverage without radically changing the health care system. 

Summary. The lack of health insurance explains a significant part of the difference in the use of health care services between African-Americans and European-Americans. Expanding insurance coverage is certain to help to increase the use of health care services. For example, in 1977 uninsured African- Americans in the South saw physicians an average of 1.5 times, while insured African-Americans saw physicians an average of 2.8 times.(255)However, it is important to note that, while African-Americans' physician visits almost doubled for those with insurance, the racial differential between African- Americans and European-Americans remained steady.(256)That is, uninsured European-Americans had 150% more visits per year than uninsured African-Americans; insured European-Americans had 132% more visits per year than insured African-Americans.(257)It seems that expanded insurance coverage is a policy option which will remove major economic barriers to health care. However, this option is not a satisfactory replacement for removing race-related problems with access to health care. Furthermore, it increases access at the risk of increasing health care cost, decreasing preference satisfaction and interfering with an individual's privacy--all of which are areas in which African-Americans will be affected in greater proportion than European-Americans. 

Ultimately, the most significant problem with expanding insurance coverage, from the African-American perspective, is that expanding insurance coverage does little more than provide individuals with a piece of paper that says, in effect, that they may obtain health care, if they can find someone to accept the coverage. Expanding coverage does nothing to ensure that a provider in the community will furnish health care nor does it address the issues of disparate medical treatment. 

 


C. Targeting Health Care Services to African-Americans
1.      Background 
Targeting health care services to African-Americans would focus resources on the specific health problems confronting them. In particular, funds could be allocated to establish community clinics in African-American communities. Such targeting services to specific population groups is not new and has been implemented in other areas: Maternal-Child health, Family Planning and Handicapped Children. Community clinics have been used to serve low income communities. 

Congress passed the Disadvantaged Minority Health Improvement Act [hereinafter DMHIA], which was passed to improve the health status of individuals from disadvantaged backgrounds, including racial and ethnic minorities, and to increase the numbers of minorities in the health professions. This was to be accomplished by establishing within the Department of Health and Human Services an Office of Minority Health and by giving the office grant authority. (258) The DMIHA also established a program of primary health care services to residents of public housing.(259) It revived and extended the program of Centers for Excellence in Health Professions Education for Minorities.(260) The Act established programs of loans, scholarships, and loan repayment for individuals from disadvantaged backgrounds who are pursuing a degree in a health profession.(261) It revised and extended the authority for the National Center for Health Statistics, and it created a new program of grants for data studies on the health of ethnic and racial minorities(262). The DMHIA established a new program of grants for assisting communities in educating minorities to serve as health professionals in those communities.(263)It revised and extended the programs of Community and Migrant Health Centers(264)and created a program of grants for improving the health status of Pacific Islanders.(265)Furthermore, the Congress appropriated funding specifically directed to issues relevant to improving African-American health. 

States could take steps to target services toward African-Americans. In 1991- 92, only nineteen states had minority health entities. Seven states established the minority health entities by statute(266)four states established the minority health entities by executive order,(267)and eight states established the entities by the appointed health officer.(268)However, the budgets for these entities indicate that they may be little more than "advisors" on minority health rather than service providers. In 1991- 1992, only three states had budgets which exceeded $500,000(269)and eleven states had less than $100,000.(270)
2.      Policy Analysis(271)
Horizontal equity. Targeting health care services to African-Americans requires treating African-Americans differently than European-Americans even when both have similar health problems. Thus, this proposal fails to promote horizontal equity. 

Vertical Equity. To the extent that African-Americans and European-Americans are affected differently by health disorders, it does provide vertical equity. For instance, more African-Americans are affected by diabetes than European- Americans. Consequently, targeting services toward African-Americans would be treating unequal groups unequally to promote equality. 

Stigma. The very act of targeting African-Americans can result in significant stigma. Singling out African-Americans would lead to labeling the beneficiaries of the programs as different. This process could increase racial polarization. Providing greater services to African-Americans could arouse opposition from other groups who perceive their needs as great as African- Americans. 

Preference Satisfaction. Whether there would be preference satisfaction depends on how the services are delivered. If the services are delivered through private providers, then certainly there would be no more problems with preference satisfaction than any of the other insurance programs. On the other hand, if the services are delivered through programs that employ a specific staff, there would be limited preference satisfaction since the choice of providers for African-Americans using the services would be limited. 

Economic Efficiency. As in expanding insurance coverage, the cost of targeting services to African-Americans is significant. The government would need to allocate additional funds for the provision of the services. However, to the extent that targeting services to specific population attacks the problem directly, targeting services could be more efficient (and less costly) than a broader approach (i.e. primary care for all). 

Privacy. To the extent that African-Americans would need to be identified as having specific health issues in order to have their health care problems addressed, issues of privacy exist. Problems also exist if programs would need information from African-Americans to monitor the community health. 

Political Feasibility. This choice has limited political feasibility. Given the current deficit, Congress may have difficulty in justifying spending limited health care resources on a narrow population group. Other groups who view themselves as having similar or significant health problems could be angered if their population was not given similar treatment. In this age of racial tension and discord, in-fighting over limited resources is undesirable. 

Summary. Targeting services to African-Americans would address some access issues and treatment disparity problems since it would require availability of services in the African-American community. The treatment disparity between African-Americans and European-Americans is more likely to be addressed in this environment. However, a major drawback to targeting service is that it does not necessarily effect change in the overall system. Assuming that such an approach would be short term, the problems of racial barriers to access and racially disparate treatment would continue. Furthermore, African-Americans not served by the special programs could continue to face those same problems. Other major drawbacks are the significant stigma that might be associated with such programs and the political unpopularity of targeting health care services for a specific ethnic population group. 

 


D. Using Title VI to Eliminate Institutional Racism 
1.      Background 
The Civil Rights Act of 1964 provides the legal force for desegregation efforts in health care. Specifically, section 601 of Title VI provides: 

No person in the United States, shall, on the grounds of race, color, or national origin, be excluded from participation in, be denied the benefits of, or be subject to discrimination under any program or activity receiving Federal financial assistance.(272) In short, Title VI prohibits discrimination on the basis of race, color, or national origin. The Office of Civil Rights (OCR) is delegated the responsibility of enforcing Title VI and the Department of Health Education and Welfare [now Department of Health and Human Services (DHHS) and Department of Education] issued the first interpretive regulations.(273) Those regulations provide that:  A recipient . . . may not . . . utilize criteria or methods of administration which have the effect of subjecting individuals to discrimination of their race, color or national origin, or have the effect of defeating or substantially impairing accomplishment of the objectives of the program as respect individuals of a particular race, color, or national origin.(274) A recipient is any public or private entity or individual that receives federal financial assistance.(275) Federal financial assistance includes federal money awarded through grant, loan, or contract.(276) In light of these two definitions, Title VI, has the potential of having a broad range effect. Once a program(277) has been determined to violate Title VI, the program "must take affirmative action to over come the effects of prior discrimination."(278)
While the statute does not specifically define discrimination, it specifically requires HEW to define discrimination.(279)In particular, Title VI regulations prohibit: 

Title VI could be used to improve access of African-Americans to health care services. Title VI regulations clearly prohibit policies and practices which result in segregation within and between institutions.(285)Hospitals and nursing homes which engage in restrictive admission practices face discontinuation of their federal funds.(286) Communities can use Title VI to resist major changes in health care delivery that disadvantage African- Americans. For example, the closing of a predominantly African-American inner- city hospital and the expansion of another hospital serving primarily European- Americans could be attacked under Title VI.(287)Similarly, Medicaid and Medicare cutbacks which primarily affect African-Americans also violate Title VI.(288) Thus, Title VI has the potential of forcing health care institutions to evaluate their policies and practices which have a disparate impact on African-Americans. 

Title VI can also be used to correct problems of racially disparate health care. Under Title VI, institutions must assure that the quality and quantity of health care services offered to African-Americans are proportionate to their need. 
2.      Policy Analysis(289)
Horizontal Equity. Title VI focuses on assuring that African-Americans who have been treated differently than European-Americans are assured the same access and health care treatment. Using Title VI as a way to eliminate institutional racism would achieve horizontal equity since it would treat equals (sick individuals) as equals.(290)  Vertical Equity. Meeting vertical equity will depend largely on the types of policies and practices an institution adopts as part of Title VI compliance. Using Title VI to eliminate institutional racism in health care merely requires that African-Americans who are sick and in need of care be given the equal access to health care and be given appropriate medical treatment. However, to the extent that African-Americans now have less access and different treatment, it would require institutions to adopt policies and practices that would assure African-Americans increased access and better treatment. Those policies and practices might treat African-Americans and European-Americans differently. If so, vertical equity would be met. 

Stigma. Using Title VI may not remove the problem of stigma. Whether stigma persists will depend on how the institutions respond to the Title VI challenges and how the community responds to health care policy changes and costs necessitated by Title VI compliance. Individuals using any targeted services would certainly risk labeling. Title VI could generally raise racial hostility among the European-Americans (and other groups) that are experiencing different types of access problems. Such hostility could result in additional stigma on African-Americans. However, to the extent that Title VI compliance assures that no group is discriminated against based on race, Title VI compliance would improve access and treatment for other ethnic groups similarly situated to African-Americans. 

Preference Satisfaction. Unlike "targeting services," Title VI could have the advantage of allowing for preference satisfaction. As institutions do away with discriminatory practices which limit access and treatment options, individuals will have increased choice. On the other hand, unless existing facilities are made sufficiently attractive to competent providers, preference satisfaction still may be lacking. To some extent, it is a program's responsibility to expend the resources necessary to assure quality of services to the African- American community. Realistically, the courts are likely to allow programs to balance this goal against other goals. 

Economic Efficiency. If the current system is the most efficient for a significant segment of the population, efficiency may be lost if health care institutions reconsider their administrative policies and their evaluations of physicians to decide the disparate impact that their institution and policies will have on African-Americans. However, evidence indicates that this system is not the most economically efficient. More than $200 billion are wasted each year in unnecessary care and inefficient administration. That $200 billion is enough to assure adequate health care and changes in the health care system to eliminate institutional racism. 

Privacy. While the other options raised issues of patient privacy, this option raises issues of provider privacy. Title VI compliance will require evaluation of physician behavior. For example, treatment decisions must be scrutinized by health care institutions and licensing boards to identify and explain any racial disparity in treatment. Provider attitudinal study may require identification of patients themselves. Even if this latter step is eliminated, individual physician treatment choices and institutional records will be scrutinized in ways not presently undertaken. Thus, privacy criteria are not met. 

Political Feasibility. Title VI can be enforced through the administrative complaint process or through a private legal action. The political feasibility of using Title VI to eliminate racism depends in part on the forum chosen. 
a.         Administrative Complaint Process.
The administrative compliance mechanism authorizes the federal agencies that award federal financial assistance to take action against programs which violate Title VI.(291)The administrative process presents several problems. First, the victim of discrimination must file a complaint with the Office of Civil Rights within 180 days of the challenged discrimination.(292)A short time period is a particular handicap among the sick and individuals who may not be aware of their rights.(293) Unawareness of rights encompasses both ignorance of the statute and ignorance of medical procedures appropriate for treatment of a disease. This leaves the individual unaware both that a treatment did not meet the standard of care and that this difference was the result of racial discrimination. Thus, it becomes difficult to use Title VI if attorneys merely wait for the patient to complain, since the patient may be completely unaware of the injury and the remedy. 

Second, the lack of formal participation of complainants in the administrative process(294)leaves the victims with little control over the remedies to be tailored. Third, the process can be unusually long. It is not unusual for the entire process to take over a year.(295) Finally, if the patient later decides to sue, there is the potential that the administrative complaint process will hold up the process of litigation.(296)Despite these problems, an administrative complaint presents several advantages. First, it can provide important leverage in negotiations with health facilities.(297) Second, the Office of Civil Rights (hereinafter OCR) can command institutions to retain racecoded statistics which will be crucial to proving discrimination.(298) Third, OCR can collect the facts saving legal services considerable time and expense.(299) Finally, under the OCR guidelines, investigated institutions have the burden of persuasion in responding to a prima facie case of discrimination.(300)This is a significant advantage since the OCR approach to discriminatory effect has been more procomplainant than the courts. 
b. Private Law Suit.
The other approach to enforcing Title VI is through a civil suit. No complaint with OCR is required before an individual files a private action under Title VI. An individual can sue to enforce both the statute and its implementing regulations.(301)One obvious drawback to litigating Title VI is that gathering and analyzing relevant statistics can be extremely time-consuming as well as expensive. However, the biggest drawback to litigating Title VI is the lack of meaningful evidentiary burdens on the defendant. 

The evidentiary burden that a defendant bears depends on the categorization of the allegations of discrimination: disparate treatment versus disproportionate adverse impact. Disparate treatment discrimination pertains to intentional discrimination. The plaintiff is charged with the burden of proving discriminatory motive. Disproportionate adverse impact involves practices which may appear racially neutral but which have a more significant negative impact on minorities. Most of the practices involved in institutional racism (admission requirements, Medicaid/Medicare cutbacks, hospital relocations, medical treatment disparity) involve disproportionate adverse impact discrimination. 

Disproportionate adverse impact analysis requires (1) the plaintiff to establish a prima facie case, (2) the defendant to establish a business justification, and (3) the plaintiff rebutting the defendant's business justification by showing less discriminatory alternatives.(302)The evidentiary burden placed on the defendant's establishment of a business justification is the most significant roadblock to establishing a Title VI violation. 

The principal evidentiary problem with Title VI disproportionate adverse impact litigations is confusion with Title VII.(303)Historically, in Title VII cases, the defendant bore the burden of not only coming forth with evidence of business justification but also the burden of proof.(304) In Wards Cove, the Supreme Court eliminated the requirement that the defendant bear the burden of proof. Under Wards Cove, a defendant need only introduce some evidence of business justification. There is no longer a requirement that the defendant prove business necessity, that the policy foster safety and efficiency, or be essential to the goal of promoting safety and efficiency.(305)However, the requirement of discriminatory intent has been rejected by the Congress in its employment discrimination legislation.(306) While this is an important development in employment law, it is an open question as to whether the courts will change their focus on Title VI cases. 

In the few Title VI health cases which exist, the burden of proof on the defendant to justify a disproportionate adverse impact policy seems to have been lessened even further. Defendants have successfully justified a policy with disproportionate adverse impact by demonstrating that the policy is rationally related to a legitimate need.(307) This standard makes it difficult to challenge racist policies and practices in the health care area. Cost containment is a legitimate goal, and courts are likely to find that any relationship between the policy or practice and cost containment will suffice. 

It is through litigation that Title VI will be unhitched from Title VII.(308) The federal government has every right to impose a burden on the acceptance of taxpayer monies. Allowing defendants to overcome the burden with a mere rationally related justification nullifies the purpose of Title VI. Since defendants do not have to accept federal funds they should be held to a "precise compliance with [the] spending power" of Title VI.(309) Courts have mistakenly turned to Title VII principles as the starting point for fashioning evidentiary burdens in Title VI cases involving challenges to facially neutral policies that have the effect of excluding minority patients. Title VII regulates purely private employment decisions . . . Title VI is a spending power statute. It does not regulate but places condition on the expenditure of federal money.(310) Summary. Hospitals, nursing homes, health care institutions, and health care providers who receive federal funds should bear the burden to justify policies which have the effect of discriminating against African-Americans. If the courts (or the legislators) can be made to see that under Title VI the government has every right to demand that its money be spent in a non- discriminating way, then Title VI has the potential of being a powerful tool to end institutional racism. Unfortunately, the combination of an increased desire to control health costs and the political climate with recent Reagan and Bush appointees to the federal court may mean that getting the courts to hold health care providers to the fire may not be politically feasible now. It remains to be seen what impact the Clinton administration will have on courts. Nevertheless, the Title VI administrative process and threatened litigation could be a powerful tool in getting health care institutions to comply voluntarily. 

 


V.      CONCLUSION 

Health care institutions have a social responsibility to identify and delineate all causes of disease and disability in a population and then to mobilize the medical resources necessary to attack those causes.(311)Since it has been shown that the health of African-Americans is markedly lower than European-American, it necessarily follows that "this situation would have to be called, in part, a racist consequence of the actions and structure of those health institutions".(312)Getting rid of the effects of institutional racism is a task for which European-American institutions must accept the responsibility, along with the burden of identifying effecting solutions. Doing nothing is an unacceptable option. It would allow the continuation of economic and social apartheid based on race. Reform efforts which call for expanded insurance coverage are inadequate not only because it is possible that only a small minority of African-Americans will continue to be uncovered; more importantly, it does nothing to relieve racial barriers to access based on the availability of culturally relevant services in the community or medical treatment disparities. While special health services could be targeted to African-Americans, fiscally and politically this alternative is very unlikely. Furthermore, it still fails to deal with the inadequacy of the system in dealing with racism. Finally, litigators could use Title VI to eliminate racist practices in health care delivery and health care education. This would do little to assure economic access. But more importantly, the courts have adopted a position which makes the use of Title VI politically difficult. However, as the courts' composition changes over the next several years this option may become more viable. 

No single approach will adequately address the multi-faceted problem of improving the health care status of African-Americans. It is also clear that the health care system is undergoing enormous changes designed to make it more just. If that reform is to include better health care for African-Americans it will need to do more than assure economic access through expanding insurance. It will need increased availability of providers through Title VI and decreased treatment disparity through Title VI. Strengthening Title VI such that it becomes politically feasible to use through both the administrative and civil process should be the quid pro quo for accepting cost containment restrictions. No system can be just so long as vestiges of racism remain. Strengthening Title VI is the only mechanism available to assure that health care in America is no longer racist.  [Racism remains a] prime cause of the unequal and racially discriminatory provision of funds for health services; of the over-crowding of the ill- equipped black hospitals and the underutilization of white hospitals; of miserable housing, gross pollution, poor sanitation, and lack of health care . . . . 

[Racism] in consequence, is the underlying structure causing the dreadful burden of excess morbidity and mortality, much of it preventable, that is borne by the black population. These health-specific effects are superimposed on the more general consequences of [racism] which bars the majority of [African-american] citizens from participating in decisions on the allocation of resources for health or other needs. 

We believe that the . . . [American] health care system is, in consequence, fundamentally flawed. Fragmentation and duplication of services . . . . is costly and inefficient. . . . 

For the majority of the black population, the whole spectrum of health services (but most urgently, primary care) is inadequate. Entire generations suffer through much of their life-times. . . . 

Even if. . . [racism] ended tomorrow, their effects on health would persist for years, in part because of the health consequences of the profound poverty . . . that [racism] itself has engendered and in part because widespread attitudes that encourage racism, elitism, sexism, a colonialist mentality, and prejudice against the poor take time and commitment to change. . . 

Clearly, . . . [America] has the ability to reduce markedly, if not eliminate, the serious health problems that exist among the black population. It can, if it chooses, eliminate the institutionalized system of racism and discrimination that have made the country, for decades, a symbol of human rights violations. The task facing. . . [us] is to continue to extend the process that [civil rights reforms] have begun, until profound and lasting improvements in health care . . . are a reality.(313)

Endnotes
*Assistant Professor of Law, University of Dayton, School of Law, B.S.N. 1971 University of Texas, M.S.N. 1978 University of Washington, J.D. 1987 Lewis and Clark College Northwestern School of Law. 

Nothing is ever done in isolation. The success of this project is due in large measure to the unwavering support of many individuals. I am thankful to Maxwell J. Mehlman, Director, Law-Medicine Center, Case Western Reserve University School of Law, and Dean Francis Conte, University of Dayton for financial support needed to complete this project. I am grateful to my colleagues Professors Vincene Verdun, Patrica Rousseau, Sean Murray and Teri Geiger for their thoughtful comments on a draft manuscript. I especially want to acknowledge the prompt and untiring research, comments, and help of research assistants Joy Walker and Lisa Feelings. I must acknowledge my sons, Tshaka Civunje and Issa Lateef, whose support and confidence kept me going. Finally, I must recognize the editorial assistance of Elizabeth S. Gioiosa and the editorial staff of Health Matrix, Journal of Law-Medicine. ).


80. FN79. CARMICHAEL & HAMILTON, supra note 1, at 4. 

81. FN80. See supra text and accompanying notes 15-78. 

82. FN81. Trevor Hancock, Beyond Health Care: From Public Health Policy to Healthy Public Policy, 76 CAN. J. PUB. HEALTH 9, 11 (Supp. 1985). 

83. FN82. When individuals are separated into different racial population groups, there is general recognition of a health disparity between them. The explanation usually given for this disparity is that differences exist in socioeconomic status or class. 

84. FN83. Certainly, poverty is a major factor in health. The poor are unable to afford the food, housing, clothing and education which would allow them to be equal participants in America society. Notwithstanding the role of poverty in health, in America, race has a separate and independent role which has never fully been addressed. 

85. FN84. See generally, Lawrence D. Brown, The Medically Uninsured: Problems, Policies and Politics, 15 J. HEALTH POL., POL'Y & L. 315, 318 (1990); Karen Davis, Closing the Gap in Health Insurance Coverage for African-Americans (Unpublished paper on file at Case Western Reserve, Health Matrix); Jack Hadely et al., Comparison of Uninsured and Privately Insured Hospital Patients, 265 JAMA 374, 376 (1991) (suggesting that the amount of care an individual receives is related to whether the individual has health insurance). 

86. FN85. See infra note 206 and accompanying text. 

87. FN86. See infra notes 204-27 and accompanying text. 

88. FN87. R.M. Cooper et al., Improved Mortality Among U.S. Blacks, 1968-1978, The Role of Anti-Racist Struggle, 11 INT'L J. HEALTH SERVICES 511, 511-22 (1981); NATIONAL RESEARCH COUNCIL, supra note 17, at 428-29; S. Woodlander et al., Medical Care and Mortality: Racial differences in preventable deaths, 15 INT'L J. HEALTH SERVICES 1, 1-22 (1985); cf. J.L. Haywood, Coronary Heart Disease Mortality/Morbidity and Risk in Blacks. II Access to medical Care 3 AM. HEART J. 794, 794-96 (1984) (explaining that African-Americans with hypertension at all social levels report less frequent use of medical care, more difficulties in getting into the health care system and greater dissatisfaction with medical care). 

89. FN88. GUNNAR MYRDAL, AN AMERICAN DILEMMA 174 (1944). 

90. FN89. Slavery in North America was one of the "harshest form of social relations ever to exist." ALPHONSO PINKNEY, BLACK AMERICANS 2 (1969). The slave had no rights and received no protection from society. The slave owner had absolute power over the slave. Id. 

91. FN90. PINKNEY, supra note 89, at 6. Jones & Rice, supra note 22, at 6; see also, Mitchell Rice, On Assessing Black Health, 9 URB. LEAGUE REV. 6, 6-12 (Winter 1985-1986). The dual status of slaves as valuable property and as persons with human rights may have encouraged some slave owners to provided, at least minimal health care. See generally, J. Thomas Wren, A. "Two-Fold Character: The Slave as Person and Property in Virginia Court Cases, 1800-1860, 24 S. STUD. 417-31 (1985) (maintaining that although slaves were perceived as property in the antebellum South, Virginia courts often recognized their humanity as well. By 1860, the Southern legal system had begun to accept an implicit duality in the states of the slaves as both property and person); Arthur Howington, "A Property of Special and Peculiar Value: The Tennessee Supreme Court and the Law of Manumission, 44 TENNESSEE HIST. Q. 302-17 (1985); Winstanley Briggs, Slavery in French Colonial Illinois, 18 CHI. HIST. 66-81 (1989-90) (arguing that the high cost of slaves and the risk of offending tribal neighbors," led the settlers to treat their slaves as subordinate, but valuable property). 

92. FN91. PINKNEY, supra note 89, at 24 (citing JOHN H. FRANKLIN, RECONSTRUCTION AFTER THE CIVIL WAR 36-37) (1961)). 

93. FN92. Throughout the period of Reconstruction, attempts were made to obstruct the progress toward "racial democracy." PINKNEY, supra note 89, at 26. The 1876 election was in dispute between Rutherford B. Hayes (Republican) and Samuel Tilden (Democrat). Hayes was declared winner with the understanding the remaining troops in the South would be withdrawn, the south would be accorded home rule, and with the assurance that the "dominant whites [would have] political autonomy and nonintervention in matters of race policy." PINKNEY, supra note 89, at 26 (citing WOODWARD, REUNION AND REACTION 246 (1966)). Thus, the Republican Party "abandon[ed] the Negro to former slave holders [and] the compromise signaled a return toward slavery." PINKNEY, supra note 89, at 26 

94. FN93. Jones & Rice, supra note 22, at 6. 

95. FN94. For instance, in 1875 Congress passed the Civil Rights Act which made it a crime for a person to deny any citizen equal access to accommodations in inns, public conveyances, theaters, and other places of amusement. Civil Rights Act of 1875, 18 St. 335. In 1883, the Supreme Court declared the Civil Rights Act of 1875 unconstitutional. The Civil Rights Cases, 109 U.S. 3 (1883). In 1896 the Court ruled that separate (segregated) facilities for African- Americans and European-Americans did not violate the Thirteenth or Fourteenth Amendment. Setting the pattern for race relations for more than three decades, the ruling declared that "If one race be inferior to the other socially, the Constitution of the United States cannot put them on the same plane." Plessy v. Ferguson, 163 U.S. 538 (1896). 

96. FN95. In 1954, the court questioned the "separate but equal" doctrine of Plessy v. Ferguson. In particular, in a unanimous decision, the court found that legally sanctioned racial segregation is usually interpreted as connoting the inferiority of blacks, which adversely affects the educational development of black children. "Any language in Plessy v. Ferguson contrary to this finding is rejected." Brown v. Board of Education, 347 U.S. 483, 494-95 (1954). 

Brown v. Board of Education was a significant milestone in civil rights. However, it was the civil rights-movement of the 1960s which culminated in the Civil Rights Act of 1964 and the Voting Rights Act of 1965, which resulted in many of the overt signs of discrimination being eliminated. 

In particular, the Civil Rights Act of 1964 (Public Law 88-352) prohibited the denial of the right to vote in national elections because of race and made a sixth grade education a presumption of literacy (Title I). Title II prohibited discrimination in places of public accommodation. Title III authorized the Justice department to file suits to desegregate public facilities. Title IV authorized the Justice Department to file suit to desegregate public schools or colleges. Title V established the Commission on Civil Rights. Title VI prohibited discrimination in federally-financed programs. Title VII prohibited discrimination in employment. Title VIII authorized the gathering of registration and voting statistics based on race. Title IX allowed for federal appeals court intervention in civil rights cases to be remanded to state courts. Title X established the Community Relations Service in the Department of Commerce. 

97. FN96. See infra notes 97-182 and accompanying text. 

98. FN97. Jones & Rice, supra note 22, at 6. 

99. FN98. Alan Sager, The Closure of Hospitals that Serve the Poor: Implications for Health Planning, A Statement to the Subcommittee on Health and the Environment, Committee on Energy and Commerce, U.S. House of Representatives, 2 (April 30, 1982); Mark Schlesinger, Paying the Price: Medical Care, Minorities, and the Newly Competitive Health Care System, in HEALTH POLICIES AND BLACK AMERICANS 275-76 (David Willis ed., 1989). 

100. FN99. Equal Access to Health Care: Patient Dumping, Hearing before a Subcommittee of the Committee on Government Operations 100 Cong, 1st Sess. 270- 87 (July 22, 1987); Robert L. Schiff et al., Transfers to a Public Hospital: A Prospective Study of 467 Patients, 314 NEW ENGL. J. MED. 552-57 (1986). 

101. FN100. Stan Dorn et al., Anti-Discrimination Provisions and Health Care Access: New Slants on Old Approaches, CLEARINGHOUSE REV. 439, 441 (Special Issue, Summer 1986). 

102. FN101. Id. 

103. FN102. Id. 

104. FN103. Id. 

105. FN104. Id. 

106. FN105. Id. 

107. FN106. Sager, supra note 98, at 2. A total of 210 hospitals either closed or relocated during the period studied. A disproportionate number of the hospitals that closed or relocated were originally located in communities where the population was predominately African-American. 

108. FN107. See generally, NAACP v. Wilmington Medical Ctr., Inc., 657 F.2d 1322 (1981) (proposal to reduce urban facility which served predominantly minorities and to construct a new suburban facility); Byran v. Koch, 627 F.2d 612 (1980) (closure of a New York City hospital whose patients were 98% minorities). 

109. FN108. Sager, supra note 98, at 2-3; See also, Roger Wilkins, Loss of Hospitals in Central City Said to Cause Array of Problems, N.Y. TIMES, Sept. 17, 1979, at D4. 

110. FN109. In 1946 Congress passed the Hospital Survey and Construction Act, presently codified as Title VI of the Public Health Service Act, 42 U.S.C. s 291. One goal of the Hill-Burton Act was to assure that hospitals would provide medical services to the residents in their communities, including those who were indigent. GEORGE ANNAS ET AL., AMERICAN HEALTH CARE LAW 80-81 (1990). 

Specifically, hospitals which receive funds under the Hill-Burton Act are obligated to perform a community service requirement. Id. at 75. In order to comply with the community service requirement, subpart G of the regulations requires that recipient health facilities be made available to all residents and prohibits exclusion of anyone in the area served by the hospital on the basis of any factor unrelated to need. Id. at 77. 

The Hill-Burton community services requirement was completely ignored for 30 years. Privately initiated lawsuits during the 1970's gave rise to the 1972 regulation changes. Id. These regulations outlined a program for monitoring compliance by Hill-Burton facilities relying on state agencies for implementation. Id. Unfortunately, the 1972 regulations did not amend or specify the meaning of community service. Kenneth R. Wing, The Community Service Obligation of Hill-Burton Health Facilities, 23 B.C.L. REV. 577, 613-14 (1982). It was not until 1974 that HEW, under court order, finally issued regulations interpreting the community service requirement. Id. at 614- 15. 

Community service now included the requirement that recipient facilities must participate in Medicare and Medicaid and take "such steps as necessary" to insure that Medicare and Medicaid patients were admitted without discrimination. Id. at 615. These regulations stopped short of imposing explicit standards for assessing compliance with the substantive requirement. In addition, evaluation and enforcement of the community service obligation was primarily on state Hill-Burton agencies, and a twenty year limitation was placed on the community service obligation. Id. at 615-16. This limitation has subsequently been invalidated. 

In 1978, HEW proposed new charity care regulations. Id. at 616. These new regulations were intended to give more specific meaning to the community service obligation and to federalize the enforcement and monitoring of responsibilities. Id. at 616-17. The result was the 1979 regulations. The 1979 regulations explicitly preclude exclusion of anyone who is in need of services offered by the facility and who is able to make some manner of payment. Id. at 620. These regulations explicitly clarify the obligation of Hill-Burton recipients with regard to people who rely on Medicare or Medicaid. Id. at 621. The 1979 regulations also prohibited the pre-admission deposits and the required referrals to staff physicians, both of which effectively excluded otherwise eligible patients. Id. at 622. 

111. FN110. Under Hill-Burton, a hospital is released from the uncompensated care requirement under the statute buy-out provision. 42 U.S.C. s 291a(1). 

112. FN111. Cf., N.A.A.C.P v. Medical Ctr., 657 F.2d 1322 (medical center proposing to close high-risk obstetrical care, inpatient pediatric care and gerontology services). 

113. FN112. The Crisis of the Disappearing Black Hospitals, EBONY, March 1992, at 23-28. 

114. FN113. Id. 

115. FN114. See generally, Judith Waxman & Molly McNulty, Access to Emergency Medical Care: Patients' Rights and Remedies, 22 CLEARINGHOUSE REV. 21-27 (Nov. 1991); Gearlding Dallek and Judith Waxman, Patient Dumping: A Crisis in Emergency Medical Care for the Indigent, 19 CLEARINGHOUSE REV. 1413 (1986). 

116. FN115. Equal Access to Health Care: Patient Dumping, supra note 99, at 270- 87. 

117. FN116. A study of transfers among 467 medical transfers to Cook County Hospital showed that 89% were African-Americans or Hispanic-Americans. The study concluded that most of the patients were transferred for economic reasons and without their consent. Schiff, supra note 99, at 552-57. 

118. FN117. 42 U.S.C.A. ss 1395 dd(a) (West Supp. 1992). 

119. FN118. Under COBRA, hospitals are required to provide appropriate medical screening examinations within the capabilities of the hospital. If a person has an emergency or is in active labor, the hospital must stabilize the medical condition or provide treatment for labor or transfer under certain conditions. In particular, there can be no transfer until stabilized except at the request of patient or if it is medically necessary and another facility is more appropriate. A transfer is appropriate if: the receiving facility has available space and qualified personnel and has agreed to accept the transfer. The transferring facility must provide appropriate medical records. The transfer must be made using qualified personnel and equipment. Enforcement is through termination of Medicare provider agreement, civil monetary penalties, and civil action for personal injury or financial loss. 42 U.S.C.A. ss 1395 dd(a)- (d) (West Supp. 1992). 

120. FN119. See generally, ARIZ. REV. STAT. ANN. s 11-297.01 1-3d (1956) (providing for transfers in three situations: where no hospital exists, where the existing hospital is overcrowded, or where the necessary services are not provided at the transferring hospital.); CAL. HEALTH & SAFETY CODE s 1317.2 (West 1990) (providing for various conditions to be met prior to the transfer of a patient such as exams, evaluations, emergency treatment. The transfer may not create a medical hazard, the hospital receiving the patient must have an appropriate bed, personnel and equipment necessary for treatment; relevant transfer information must be given to the receiving hospital.); FLA. STAT. ANN. s 401.45 1 (West 1943) (providing that no person shall be denied emergency medical treatment); IDAHO CODE s 39-1391 (1947) (providing for emergency treatment to persons appearing seriously sick or injured without admission of that person. This can have the effect of requiring stabilization prior to transfer. However, since the patient is never actually admitted, the hospital can realistically transfer the patient at any time); ILL. ANN. STAT. ch. 111 1/612, para 6151 (Smith-Hurd 1934) (providing that no health care provider can refuse needed emergency treatment to a person whose life would be threatened in the absence of such treatment due to an inability to pay.); MASS. GEN. LAWS ANN. ch 111 s 70E (West 1958) (providing for prompt life saving treatment in an emergency without discrimination or delay. There is an exception stating that a delay may not impose a material risk.); N.C. GEN. STAT. s 131E-117 15 (1943) (providing for no transfers or discharges but allows many exceptions including consideration of the patient's own or other patients' welfare, and nonpayment for the stay. The effect of the exceptions is that patients are not protected from nonmedical transfers.); PA. STAT. ANN. tit. 35, s 449.8 (1930) (providing that transfers may only occur in instances where the facility lacks the staff or facilities to properly render definitive treatment.); TENN. CODE ANN. s 68- 11-701 (1955) (requiring stabilization prior to transfer and such efforts necessary to sustain the patient during the transfer.); TEX. CODE ANN. s 241.027 b (West 1986 & Supp. 1992) (providing for medically appropriate transfers from physician to physician and from hospital to hospital by providing the following: notification to the receiving hospital prior to the transfer, stabilizing prior to and during the transfer, provisions for the appropriate personnel and equipment for the transfer, necessary records. Transfers may not be based on discrimination or economic status.) But see, COLO. REV. STAT. ANN. s 26-15-106 8b (West 1989) (providing for transfers of indigent patients without any restrictions except for a prior agreement to the transfer by the receiving contract provider.) DEL. CODE ANN. tit 16 s 1121 18 (allowing transfers for the patient's own welfare or the welfare of other patients, and for nonpayment); WASH. REV. CODE ANN. s 70.168.100 e (West 1961 & Supp 1992) (requiring only that prior to transfer, agreements with providers outside the region are established to facilitate the transfer; See also, Dorn & Waxman, States Take the Lead in Preventing Patient Dumping 22 CLEARING-HOUSE REV. 136 (1988). 

121. FN120. Waxman & McNulty, Access to Emergency Medical Care, supra note 114, at 21-27. 

122. FN121. Id. 

123. FN122. Id. 

124. FN123. See infra notes 207-09 and accompanying text. 

125. FN124. Johnson v. University of Chicago Hosps., 982 F.2d 230 (1992). 

126. FN125. Id. at 231. 

127. FN126. Id. 

128. FN127. Id. 

129. FN128. Id. 

130. FN129. Id. 

131. FN130. Id. 

132. FN131. Id. at 232. 

133. FN132. Id. 

134. FN133. "Nursing homes" is a generic term used to describe two types of facilities: Intermediate care facilities (ICF) and skilled nursing care facilities (SNF). Intermediate Care facilities provide institutional, health- related services above the level of room and board, but at a level of care below that of hospital or SNF care. See 42 U.S.C. ss 1396c(d) (1988); see also 42 C.F.R. s 440.150 (1991). Skilled Nursing Facilities provide institutional care above the level of ICF services but below the level of a hospital. See, 42 U.S.C. s 1396d(i) (1988); 42 C.F.R. s 440.40 (1991). 

135. FN134. Cassandra Butts, The Color of Money: Barriers of Access to Private Health care Facilities for African-Americans, (Unpublished manuscript on file at Case Western Reserve, Health Matrix Office) (citing David A. Smith, Discrimination in Access to Nursing Homes in Pennsylvania (1991)). 

136. FN135. But see, Linton v. Carney, 779 F.Supp 925, 933 (M.D. Tenn 1990) (rejecting defendants' assertion that "self-selection preferences" of the minorities, based upon the minorities' reliance upon the extended family, lack of transportation, and fear of institutional care, adequately explain the disparate impact). 

137. FN136. Butts, supra note 134, at 5-7. For instances, although African-Americans rely on family and friends for long term care, the rate of use of nursing homes is rising faster