Vernellia R. Randall
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RACIST HEALTH
CARE:
REFORMING AN UNJUST HEALTH
CARE SYSTEM
TO MEET THE
NEEDS OF AFRICAN-AMERICANS
Vernellia
R. Randall(*)
3 Health Matrix 127-194 (Spring, 1993)
Copyright (c) 1993 Health Matrix: Journal of Law-Medicine;
Vernellia R. Randall |
III.
INSTITUTIONAL RACISM AND AFRICAN-AMERICAN HEALTH STATUS
Racism is both overt and covert, it takes two closely-related forms:
individual whites acting against individual blacks, and acts by the total
white community against the black community. We called these 'individual
racism and institutional racism'. The first consists of overt acts by individuals,
which causes death, injury or the violent destruction of property. The
second type is less overt, or more subtle, less identifiable in terms of
specific individuals committing the acts. But, it is no less destructive
of human life. The second type originates in the operation of established
and respected forces in the society, and thus receives far less public
condemnation than the first type.
When white terrorists bombed a black church and killed 5 black children,
that is an act of individual racism, widely deplored by most segments of
the society. But, . . . [when] black babies die each year because of the
lack of proper food, shelter, and medical facilities, and thousands more
are destroyed and maimed physically, emotionally, and intellectually because
of conditions of poverty and discrimination in the black community, that
is the function of institutional racism.(80)African-Americans
are sicker than European-Americans.(81)
Knowing that African-Americans are sicker than European-Americans does
not explain why. It certainly does not indicate the presence of institutional
racism. To understand the role of institutional racism in health status
requires an understanding of how health status is determined.
Many things affect health status. An individual's personal lifestyle
choices affect health status because they affect an individual's personal
behavior and psycho-social health, which affect his or her physical health.
Physical environment and biology also affect health status. Health care
institutions affect health status because both personal behavior and human
biology are affected by an individual's access to health care, and by the
quality of health care the individual receives from health care institutions.(82)
Class theory maintains that the primary factor affecting differences in
health care status between racial groups is socioeconomic.(83)
According to the class theory, socioeconomic class affects life-style,
psycho-social behavior, personal behavior, human biology, physical environment,
access to health care, and the behavior of the system and its institutions
toward the individual.(84)
According to the class theory, it is lack of money, not racism, that explains
the disparity in health.
Certainly, access to health care services is related to ability to pay,
and ability to pay is related to access to health insurance. It is estimated
that 37 million Americans are uninsured.(85)
The spiraling costs of health care and health insurance make it impossible
for many individuals to afford to purchase either privately. And yet, only
about half of the poor meet government assistance programs' eligibility
requirements.(86) Many
African-Americans are unemployed or employed in jobs that do not provide
health care insurance. Many African-Americans are above the poverty line,
disqualifying them for government assistance programs. Other African-Americans,
approximately 25%, fall between the cracks, uninsured, without government
assistance and without equitable access to health care. Consequently, many
policy makers are suggesting health care reform proposals designed to minimize
the effect ability (or inability) to pay has as a barrier to health care.(87)
Even if any of the health care reform proposals are successful, the effect
of socioeconomic class on health status will not be eliminated. In fact,
its major effect will still exist, since socioeconomic class will continue
to affect personal behavior and psycho-social health, physical environment,
and human biology. Nevertheless, theoretically, access to health care will
no longer be based on economics and ability to pay. If one accepts the
class theory, then one must believe that establishing a universal health
insurance will minimize the impact of class on health care access and should
result in improved health for African-Americans.
The class theory, however, oversimplifies the issue and completely ignores
the independent role of race in American society.(88)
Race influences not only life-style, personal behavior, psycho-social behavior,
physical environment, and biology, but also socioeconomic status. Thus,
race has a double influence.
Racism in America establishes separate and independent barriers to health
care institutions and to medical care. Those who advocate for the class
theory ignore the fact that removing economic barriers does not remove
racial barriers. Racial barriers to health care are exhibited in two areas.
First, institutional policies based on race establish barriers to access
to health care to African-Americans. Second, practitioners provide disparate
medical treatment to African-Americans based on their race which is not
related to their socioeconomic class.
A. Racial Barriers to Access It is hard to separate the effects of discrimination from those of concentration
of Negroes in those areas where medical facilities are not easily accessible
and in those income brackets that do not permit the purchase of medical
facilities in the competitive market. Discrimination increases Negro sickness
and death both directly and indirectly and manifests itself both consciously
and unconsciously. Discrimination is involved when hospitals will not take
in Negro patients; or when--if they do permit Negro patients--they restrict
their numbers, give them the poorest quarters, and refuse to hire Negro
doctors and nurses to attend them. . . . Ill health reduces the chance
of economic advancement, which in turn operates to reduce the chance of
getting adequate medical facilities or knowledge necessary for personal
care.(89)Discrimination
in health care has its foundation in the historical relationship between
African-Americans and southern medical institutions. As slaves, African-Americans
were perceived as property.(90)While
slave owners attempted to protect their own economic interests by providing
minimal health care, most left the slaves to live or die as fate might
befall them.(91)After
the Civil War, the Bureau of Refugees, Freedmen and Abandoned Lands (Freedman
Bureau) was instituted to "furnish supplies and medical services" to the
former slaves.(92) However, the Freedman
Bureau had very limited effect in providing services to former slaves.
In fact, the Compromise of 1877 effectively ended the period of Radical
Reconstruction which had been an attempt by the nation to make affirmative
efforts in helping African- Americans.(93)
During the Post-Reconstruction era, African-Americans were excluded from
health care either by prohibition or discrimination.(94)
[Even] where segregation and discrimination [were] not required by law
they became deeply ingrained in the mores. Such behavior became part of
the American Way of Life' . . . . (95)
This "way of life" remained visible until the Civil Rights Movement of
the 1960s.(96)After the
1960s, health care institutions either fled predominant African-American
communities or instituted policies which resulted in limited access for
African-Americans.(97)Discrimination
can take two forms. Discrimination can be based on racist conduct that
is intentional or it can be based on conduct which, although not intentional,
nevertheless results in a disproportionate disparate impact on African-Americans.
Much of the institutional racism has historically moved from intentional
conduct to unintentional. While this classification may offer a distinction
when assigning fault or culpability, the classification makes little difference
to the African-American feeling the adverse affects of discrimination.
This legacy of a racist health care system persists today in African-
Americans who are sicker than European-Americans and who continue to experience
racial barriers to access. Racial barriers to access can be divided into
three major groups: barriers to hospitals, barriers to nursing homes, and
barriers to physicians and other providers.
The institutional racism that exists in many hospitals manifests itself
in a number of ways including the adoption, administration and implementation
of policies that restrict admission;(98)
the closure, relocation or privatization of hospitals that serve the African-American
community;(99) and the
transfer of unwanted patients (known as "patient dumping") by hospitals
and institutions.(100)
ADMISSION RESTRICTIONS. Many hospitals discriminate by using patient
referral and acceptance practice standards that limit access. These practices
restrict the admission of African-Americans to hospitals.(101)Discriminatory
admission practices include:
 | . Layoffs of recently hired African-American physicians - where those African-American
physicians admit most of the African-American patients served by the hospital;(102) |
 | . Not having physicians on staff who can accept Medicaid patients;(103) |
 | . Requiring pre-admission deposits as a condition of obtaining care;(104) . |
 | Refusing to participate in programs to finance care for low-income patients
not eligible for Medicaid;(105) and, |
- . Accepting only patients of physicians with staff privileges when the
patients of such physicians do not reflect the racial composition of the
local community.(106)
Such practices may have a devastating effect on African-Americans. The
practices may banish African-Americans to distinctly substandard institutions
treating mostly minority groups. They may completely prevent care where
African-Americans have no access to other sources of care.
COMMUNITY AVAILABILITY. Racial barriers to health care access
are based, in large part, on the unavailability of services in a community.
Increasingly, hospitals that serve the African-American community are either
closing, relocating or becoming private. In a study done between 1937-1977,
researchers showed that the likelihood of a hospital's closing was directly
related to the percentage of African-Americans in the population.(107)
Throughout the 1980s many hospitals relocated from heavily African-American
communities to predominantly European-American suburban communities.(108)This
loss of services to the community resulted in reduced access to African-
Americans. Geographic availability and proximity are important determinants
to seeking health care services early. If African-Americans fail to seek
early health care, they are more likely to be sicker when they do enter
the system; and the cost for the patient to receive service and for the
system to provide services at that point is likely to be greater than at
an earlier state. Therefore, not only does the loss of services significantly
increase health care costs to African-Americans, but also, it increases
health care costs to the society in general.(109)Another
devastating trend that affects the access of African-Americans to health
care is the privatization of public hospitals. Quite a few hospitals (public
and non-profit) have elected to restructure as private, for-profit corporations.
As public hospitals, many were obligated to provide uncompensated care
under the Hill-Burton Act.(110)
As private hospitals, these institutions are most likely to discontinue
providing general health services to the indigent populations, (111)and
essential primary health care services to serve African-American communities.(112)The
problem of limited resources is not new and has plagued the African- American
community since slavery. Historically, African-American communities attempted
to address the problem by establishing African-American hospitals. At one
point there were more than 200 African-American hospitals in the United
States. African-Americans relied on these institutions to "heal and save
their lives."(113)Now,
these institutions are fighting for their own survival. By the 1960s, only
90 African-American hospitals remained. Between 1961 and 1988, 57 African-
American hospitals closed and 14 others either merged, converted or consolidated.
By 1991, only 12 hospitals continued to "struggle daily just to keep their
doors open".(114)As
a result of closures, relocations, and privatization, many African-Americans
are left with limited, if any, access to hospitals.
PATIENT DUMPING. An African-American seeking care at a private
hospital faces the possibility of being "dumped", that is, the hospital
may transfer an "undesirable" patient to a different facility.(115)The
transfer is medically appropriate only when the care required is not available
at the transferring hospital. However, many transfers are for economic
reasons, i.e., the patient was either uninsured or unable to make admission
deposits.(116)African-Americans
are disproportionately affected by these practices.(117)In
1986, Congress passed the Emergency Medical Treatment and Active Labor
Act which became effective as Section 9121 of the Consolidated Omnibus
Reconciliation Act (COBRA).(118)The
Act provides a cause of action against hospitals that "dump" patients with
emergency conditions from their emergency rooms, or who "dump" pregnant
patients in active labor.(119)Several
states have make "patient dumping" illegal.(120)However,
limited enforcement of these legislative enactments makes patient dumping
an ongoing problem. For instance, as of October 30, 1990, only 530 facilities
had been investigated;(121)only
139 facilities were found in violation of the statute;(122)and
only five facilities actually lost their Medicare contracts.(123)A
high percentage of African-Americans are uninsured or under-insured.(124)Consequently,
patient dumping continues to be an issue that plagues African-Americans.
Furthermore, hospitals have developed methods to dump the patient without
invoking the statute. For instance. the statute provides that hospitals
receiving federal funding must accept any patient who "comes to an emergency
room." If hospitals reroute the patient before the patient arrives then
the statute will not apply.(125)In
Johnson, a parent called the paramedics after her baby went into cardiac
arrest.(126) The paramedics
contacted University of Chicago hospital.(127)The
hospital told the paramedics to take the child to another hospital even
though it was only five blocks away.(128)The
child was taken to a hospital without a pediatric intensive care unit and
had to be transferred to another hospital.(129)The
child died after admission to the second hospital.(130)The
plaintiff sued on common law claims and for violation of COBRA. The district
court dismissed and the Seventh Circuit upheld the dismissal of the COBRA
claim.(131)The Seventh
Circuit noted that "In accordance with the plain meaning of the statutory
language, we do not believe that the infant ever 'came to' the hospital
or its emergency department. For purposes of COBRA, a hospital-operated
telemetry system is distinct from that same hospital's emergency room."(132)The
court went on to acknowledge that a ". . . hospital could conceivably use
a telemetry system to dump patients"; nevertheless, the court held that
the "statute does not expressly address the question of liability in such
a situation."(133)Thus,
the Seventh Circuit leaves the door open for other hospitals to continue
dumping patients, most of whom will be African-Americans.
2. Barriers to Nursing Homes Nursing homes(134)are
the most segregated publicly licensed health care facilities in the United
States. Smith, in his study, concludes that racial discrimination is the
major factor explaining that type of segregation.(135)
It has been suggested that any difference in African-American use of nursing
homes can be explained by cultural biases against using nursing homes as
care source for disabled or aged family members.(136)However,
in some areas (such as Delaware and Detroit Metropolitan) African-Americans
make up a higher portion of nursing home residents than European-Americans.
This suggests that African-Americans do not consistently decide against
nursing homes.(137)
Furthermore, even where racially neutral policies exist, institutional
racism is still a factor. For instance, evidence about the use of nursing
homes under Medicaid demonstrates that institutional racism has an impact
even without regard to economic class.(138)
For instance, although African-Americans constitute only 12% of the nation's
total population, the African-American poverty rate (31%) is three times
greater than the European- American poverty rate (10%).(139)However,
African-Americans constitute only 29% of the Medicaid population and 23%
of the elderly poor.(140)Medicaid
expenditures for African-Americans are only 18% of total expenditures.(141)If,
indeed, African-Americans are sicker, then Medicaid expenditures for African-Americans
should at least be equal to, if not greater than, the percentage of Medicaid's
African-American population. It is this combination of under-representation
and under-spending in Medicaid that suggests racism.
In part, this disparity in expenditure is based on the limited access
that African-Americans on Medicaid have to nursing homes, both intermediate
and skilled nursing facilities.(142)Only
10% of Medicaid intermediate care patients are African-Americans.(143)Similarly,
only 9% of Medicaid skilled nursing care facilities' patients are African-Americans.(144)This
disparity may be due in part to a policy allowing limited bed certification.
Under limited bed certification, nursing homes determine the number of
beds that are certified to participate in Medicaid. Federal regulations
permit a distinct part of intermediate care facilities to be certified.(145)Some
states will certify a limited number of beds.(146)Thus,
the certified portion of a facility need not contain all intermediate care
facilities residents.(147)Furthermore,
some states will certify beds which are not in a separately administered
unit of a facility, but are instead part of a wing or ward that also contains
non-certified beds.(148)Limited
bed certification programs allow nursing home operators to give preference
to private pay patients by reserving for their exclusive use beds which
are unavailable to Medicaid patients.(149)
It also allows the nursing home operators to change the bed certification,
resulting in disruption of the care of Medicaid patients by displacing
them after they have been admitted to a nursing home.(150)Displacement
can occur in several ways. It occurs when a patient exhausts his or her
financial resources. The patient needs to make a transition from private
pay to Medicaid.(151)At
that point, a patient may be told that his or her bed is no longer available.(152)Furthermore,
displacement occurs when a patient with insurance (private, medicaid or
medicare) is transferred from a skilled nursing facility to an intermediate
care facility. If the insurance will not cover intermediate care, the patient
may not have financial resources to continue obtaining nursing home care.
(153)
Similarly, displacement can occur when a patient already on Medicaid and
authorized to receive skilled nursing care is reclassified for intermediate
care only.(154)A nursing
home can manipulate the availability of nursing home beds by certifying
(and decertifying) beds. This certification and decertification process
limits access to minorities. Linton v. Carney(155)
effectively challenged the practice.
In Linton, Mrs. Linton was threatened with an involuntary transfer from
the facility she occupied. The threatened transfer was due to a change
in her classification status by the Tennessee Medicaid program.(156)
Although Mrs. Linton occupied a bed in the nursing home certified for her
new classification, the nursing home threatened to decertify her bed.(157)
No other beds were available in the facility.(158)Joining
Mrs. Linton (as a plaintiff- intervenor) was Mrs. Carney. Mrs. Carney was
an 89-year-old African-American who could not find an available nursing
home in the state of Tennessee.(159)The
District Court found the limited bed certification policy to violate both
Title VI of Civil Rights Act and the Medicaid statute.(160)
The Linton court recognized that Title VI prohibits policies and practices
with adverse disparate impact on ethnic and racial minorities.(161)According
to the court, the plaintiffs showed that the defendants' limited bed certification
policy had a disparate impact on racial minorities.(162)While
the defendants argued the "self-selection preferences" of the minorities
adequately explained the disparate impact(163)
the court rejected that interpretation as "sufficient justification for
minority under-representation in nursing homes."(164)Therefore,
the defendants did not meet their burden of proof.(165)
Linton demonstrates that health care programs can operate in a racist way
despite the appearance of racial neutrality. Any reform to the health care
system that does not specifically address race has the potential of being
racist and discriminatory.
3. Barriers to Physicians and Other Providers Another important aspect of access to care is the availability of health
care providers who serve the African-American communities.(166)
It should go without saying that proximity increases utilization. At this
point, data on the actual numbers of white physicians who have offices
in the African-American community are not available. There are probably
very few. Consequently, African-American physicians have been an important
aspect of filling the availability gap. Without physicians and providers
in their communities, African-Americans are likely to delay seeking health
care. That delay can result in more severe illness, increased health care
cost, increased mortality and increased costs to society.
Given the increased morbidity and mortality among African-Americans
logically one would expect more health care providers in their communities
not fewer, and more African-Americans in health care fields. Scrutiny of
the physicians heading in the Yellow Pages of any major city, clearly indicates
that many physicians do not physically serve the African-American community.
Furthermore, despite being 12% of the population, African-Americans
are seriously under-represented in health care professions. Only 3% of
the physicians in the United States are African-Americans;(167)only
2.5% of the dentists in the United States are African-Americans;(168)
and only 3.6% of the United States pharmacists are African-Americans.(169)
While this lack of representation is particularly significant for African-American
communities which rely on African-American physicians for care,(170)
it also impacts the entire community. Shortage of adequate care results
in sicker individuals and an increase in overall health care costs. If
African-Americans are sicker, they need more physicians, not fewer. Yet,
we see the same limited availability of providers, as of hospitals, to
service African-American communities.(171)The
shortage of African-American professionals further affects health care
availability by limiting African-American input into the health care system.(172)While
the control of health care distribution is ultimately in the hands of the
individual physician, that control is influenced and limited by law, hospital
practices and policies, and the medical organization of the physician's
practice. With so few African-American health care professionals, the control
of the health care system lies almost exclusively in European-American
hands.
The result is an inadequate, if not ineffective, voice on African- American
health care issues. This lack of African-American voice leads to increased
ignorance on the part of European-Americans regarding issues pertaining
to African-American health. When health care issues are defined, the policy
makers' ignorance results in their overlooking African-Americans' health
concerns.
B. Racial Disparities in Medical Treatment Racial barriers to access is only one aspect of institutional racism. Another
aspect of institutional racism is the occurrence of racial disparities
in type of services ordered and in the provision of medical treatment itself,(173)
well-documented in studies done in cardiology, cardiac surgery, kidney
disease, organ transplantation, internal medicine and obstetrics.
Cardiology and Cardiac Surgery. African-Americans and European-Americans
have similar rates of hospitalization for circulatory system disease. Yet,
studies have found that European-Americans are one-third more likely to
undergo coronary angiography(174)
and two to three times more likely to undergo bypass surgery.(175)
Kidney Disease and Kidney Transplantation. The aggressive treatment
of long- term kidney disease is based in part on race. Studies indicate
that European- Americans are 5% to 15% more likely to receive aggressive
treatment.(176) In fact,
the most favored patient for long term hemodialysis is a European-American
male between the ages of 25 to 44.(177)
A European- American on dialysis is two-thirds more likely to receive a
kidney transplant than a non-European-American. (178)
While the likelihood of receiving a kidney transplant is related to income,
the effects of income and race are independent from each other,(179)
meaning that middle-income African- Americans are less likely to receive
a kidney transplant than middle-income European-Americans.
Internal Medical Treatment. The patient's race has been correlated
with the intensity of medical treatment. For example, when hospitalized
with pneumonia, African-Americans were less likely than European-Americans
to receive intensive care.(180)
This disparity in medical treatment persisted even after controlling for
clinical characteristics and income.(181)
Obstetrical Treatment. African-Americans were more likely to
be classified as "clinic" patients despite comparable ability to pay for
care. Private patients were more likely than clinic patients to have caesarean
sections.(182)This is
true even though clinic patients were in poorer health and were more likely
to have low birth weight babies.(183)
These studies all raise the issue that African-Americans receive health
care treatment different from the "preferred" patient the European-American
male. Whether this difference is based on individual prejudices or medical
school training, it is evidence of institutional racism that cannot be
tolerated. Any patient seeking care from a physician should be able to
be assured of the most appropriate medical treatment available. Irrespective
of race, each of us should be assured that the physician will act in our
best interest. Every person should be assured that the physician will not
let personal prejudice or medical prejudice influence our medical treatment.
As the situation exists, an African-American does not have those assurances.
Race affects access to care independent of socioeconomic class. Race also
affects medical treatment independent of socioeconomic class. While the
disparities in treatment decisions reflect clinical characteristics, income,
medical or biological differences, they also reflect racial bias.(184)
To improve the health of African-Americans, it is not sufficient merely
to remove barriers to access based on socioeconomic class. Health care
institutions must rid themselves of institutional racism.
Medicine has found cures and controls for many afflictions, improving
the health of all Americans--African-Americans, Asian-Americans, Hispanic-
Americans, Native-Americans and European-Americans.(185)
However, the health institutions have failed to extend the same magnitude
of improvement in health among European-Americans to African-Americans
and other minority populations.(186)
Health institutions have failed to eliminate the racial distribution of
health care.(187)They
also continue to perpetuate distinctions. Such a situation is intolerable.
Of all the influences on African-Americans health, the influence of health
care institutions, though relatively small, should nevertheless be free
of racial prejudice and discrimination.
IV.
HEALTH POLICY AND ELIMINATING THE HEALTH DISPARITY
This the American black man knows: his fight here is a fight to the
finish. Either he dies or wins. If he wins, it will be by no subterfuge
or evasion of amalgamation. He will enter modern civilization here in America
as black man on terms of perfect and unlimited equality with any white
man, or he will enter not at all. Either exterminate root and branch, or
absolute equality. There can be no compromise. This is the last great battle
of the West.(188) Institutional
racism is a term that describes practices in the United States nearly as
old as the nation itself. Institutional racism comprises those policies,
practices, and activities which injure or damage an individual or group
based on race. Like individual racism, the effects of institutional racism
can derive from intentional or unintentional conduct. For African- Americans
who face disproportionate morbidity and mortality, whether the conduct
was intentional or not is irrelevant. When medical institutions' behavior
sets up racial barriers to access and provides racially disparate treatment
of African-Americans, and thereby injures those the institutions purport
to help, the institutions are institutionally racist.
African-Americans have not profited as much as European-Americans by
the early advances of health care. In fact, the gap between African-American
health and European-American health has widened over the last ten years.
(189)
Racism has adversely affected African-American health independently of
other factors contributing to excess African-American morbidity and mortality.
We have much to lose by its persistence.
In 1992, the presence of institutional racism in a system dedicated
to improving the life of all Americans is a powerful indictment of a system
that offers part of its population what some consider the best health care
in the world.(190)Despite
having ultimate responsibility for providing health care for all Americans,
despite a belief in this country that all persons have certain rights to
life, liberty and health, the American health care institution has contributed
to and perpetuated racism.
What white Americans have never fully understood -- but what the Negro
can never forget -- is that white society is deeply [racist]. White institutions
created it, white institutions maintained it and white societies condone
it.(191) For health
care institutions to remove the blemish of racism, they must develop specific
solutions. To bring African-American health on par with European-American
health, we must design and implement a delivery system to effectively address
the health issues of African-Americans. There are four policy/legislative
positions that can be adopted (singly or in some combination).(192)
First, the health care system, legislature or court can do nothing. The
legislature (and courts) could continue to rely on the present system without
specifically addressing issues relevant to African-American health. This
position denies that the health care system perpetuates disparity among
African-Americans and European-Americans. However, this position does provide
a base measure against which other policy alternatives can be evaluated.
Second, insurance coverage could be expanded. Expanding insurance coverage
would theoretically remove economic barriers to health care. Third, based
on those facts that suggest severe treatment disparity between African-Americans
and European-Americans, special health services could be targeted to African-
Americans. Finally, Title VI of the Civil Rights Act could be used to eliminate
racist practices in health care delivery systems.
Policy options are neither right nor wrong and can only be evaluated
in the context of how well the policy satisfies other criteria. These policy
alternatives can be evaluated using seven criteria: horizontal equity,
vertical equity, economic efficiency, preference satisfaction, privacy,
avoidance of stigma, and political feasibility. Horizontal equity seeks
to treat equals as equals. For example, a policy proposal that targets
services to all diabetic patients residing in the United States satisfies
the criterion of horizontal equity, whereas a policy targeting all African-American
diabetic patients does not.(193)
Vertical equity is unequal treatment of unequals, trying to make them more
equal. Vertical equity suggests that a good policy proposal is one that
favors the have-nots over the haves in the distribution of benefits.(194)
Economic efficiency is the use of resources to produce the maximum benefit
for the smallest expenditure.(195)Preference
satisfaction requires that a policy produce the most happiness for the
greatest number of people, usually by creating options and allowing individuals
to maximize their own preferences. Therefore, in selecting between alternate
policy options, the policy which is consistent with people's preferences
is favored.(196) One
problem with preference measurement is that human preferences do change
as a result of education and advertising. Therefore, weight given to preference
satisfaction should be considered against the likelihood of the preference
being changed. The privacy criterion stipulates that a policy should not
allow intrusion into the life of the individual.(197)Avoidance
of stigma means that individuals are not negatively labeled as different
from other citizens not affected by the policy.(198)
Political feasibility is the possibility that the particular alternatives
have a chance of being adopted and implemented by the courts and legislature.(199)
A. "Do Nothing" Policy Option(200)
Horizontal Equity. In evaluating the different policy options, the
"do nothing" option serves as a baseline. The existent system does not
provide African-Americans who are ill with the same access as sick European-
Americans; nor do African-Americans receive the same treatment once in
the health care system. Consequently, sick African-Americans are not treated
the same as sick European-Americans. The current system lacks horizontal
equity.
Vertical Equity. Doing nothing maintains the status quo and does
not attempt to improve access or treatment services for African-Americans.
African-American communities have fewer providers and medical institutions.
African-Americans have disproportionate morbidity and mortality. Doing
nothing does not address the unique needs of African-Americans. Doing nothing
does not close the gap in health between African-Americans and European-Americans.
Given the unequal access and unequal medical treatment, doing nothing makes
no changes which, by treating African-Americans differently, would lead
to equal health care. Therefore, vertical equity does not exist.
Economic Efficiency. To the extent that the United States is
already spending enough to bring every citizen high quality, high-technology
care, economic efficiency is not met. Of the $817 billion that is spent
each year on health care, it is estimated that $200 billion is spent on
unnecessary medical care, overpriced procedures and inefficient administration.(201)Apparently,
the current system is not economically efficient. Reforming the health
care system to meet the needs of African-Americans will not be any more
economically inefficient than the current system.(202)
On the other hand, failure to reform the system will mean continued costs
in African-American lives. This cost is one which will not only affect
individual lives and the African-American community, but also the general
society in lost productivity and additional health care expenses.
Preference Satisfaction. Preference satisfaction requires that
a policy produce the most happiness for the greatest number of people,
usually by creating options and allowing individuals to maximize their
own preferences. Whether preference satisfaction exists depends on whose
perspective one considers. Certainly, for those who have access to the
health care system and adequate treatment, doing nothing might allow them
to maximize their own preferences. However, for African-Americans whose
access to health care is limited and whose treatment is below standards,
doing nothing would not create options or allow them to maximize their
preferences.
Privacy. The privacy criterion stipulates that a policy does
not allow intrusion into the life of the individual. The current system
maximizes an individual's privacy. Theoretically, the free-choice, fee-for-service,
retrospective payment system currently serving much of the population,
neither limits from whom an individual can seek services nor limits the
services that a provider can render. Those enjoying limitless services
are not required to disclose information to receive care. In this way,
doing nothing maximizes the privacy of those with access to health care
services; while those without access to services have no privacy issues,
because they are excluded from participation.
Stigma. Avoidance of stigma means that individuals are not negatively
labeled as different from other citizens not affected by the policy. To
the extent that doing nothing allows the gap in health between African-Americans
and European-Americans to continue, it may cause some stigma. Individuals
who believe that a major cause of illness and death is behavior may view
reports of poorer health among African-Americans as evidence of poor health
behavior. To some extent they are correct.(203)However,
if European- Americans fail to acknowledge the role of the health care
system, doing nothing results in a failure of the health care system to
accept responsibility for its role in the health of African-Americans.
It also leads to indirect blaming and negative labelling of African-Americans.
Political Feasibility. Political feasibility is the possibility
that the particular alternatives have a chance of being adopted and implemented
by the courts and legislature. Maintaining the status quo is generally
easier than making substantial changes. The likelihood that specific actions
will be taken to improve the health of African-Americans seems slim, since
little attention is being given the problem.
Summary. The do nothing option allows for the social, economic,
and health care disparity to continue to exist between African-Americans
and European- Americans. Racial and economic barriers to access experienced
by African- Americans would persist. Racial and economic barriers to entering
the health care professions would remain. Doing nothing would be to insist
on ignoring the racial disparities in medical treatment. This situation
is untenable. The health of African-Americans clearly indicates that something
needs to be done.
B. Expanded Insurance Coverage The United States and South Africa are the only major industrialized nations
without a universal health insurance system that guarantees access to health
care for all of their citizens. What the United States has instead of universal
health care is a scheme of employer-financed insurance and government programs(204)that
still leaves more than 37 million Americans without the financial resources
to pay for health care.(205)The
lack of health insurance is a particular issue for African-Americans who
are less likely to have employer-financed insurance.(206)
While public programs, such as Medicaid and Medicare, are important sources
of health care coverage for many low-income and African-Americans, they
do not reach all of the uninsured poor.(207)
In fact, one-fourth (25%) of African-Americans have no source of health
coverage.(208) Even
more disturbing is that the number of uninsured African-Americans is increasing.
In 1977, only 18% of African-Americans had no health coverage.(209)
Furthermore, the gap between African-American uninsured and European-American
uninsured is widening. For instance, while the proportion of uninsured
non-elderly European-Americans increased only 3 percent from 1977 to 1987
(from 12% to 15%), the proportion of uninsured non-elderly African- Americans
increased 7% (from 18% to 25%) during the same period.(210)Since
private health insurance coverage is linked to employment, racial barriers
to employment are one explanation for the significant difference in insurance
coverage. For example, in 1990 the African-American unemployment rate was
240% more than the European-American unemployment rate.(211)
Even where employed, the African-American is more likely to be in a lower
paying job which does not provide employer-based health insurance.(212)
Another factor affecting insurance coverage is the higher percentage of
African-American families with only one adult.(213)
Families with two working adults are more likely to have at least one adult
with employer-based insurance.(214)However,
while the absence of health insurance is much more likely with lower income,
race is an independent factor affecting whether an individual will be insured.
In fact, the racial difference in proportion of uninsured is most marked
at higher incomes.(215)
For example, poor/low income African- Americans are uninsured at about
the same rate as poor/low income European- Americans; however, middle/high
income African-Americans are almost twice as likely to be uninsured than
higher income European-Americans.(216)
Expanding insurance coverage so that everyone will have either employer-based
or government-based insurance is one proposal for addressing the inequities
in the health care system.(217)During
the 102nd Congress, more than thirty proposals were introduced to expand
insurance coverage and reform the health care system.(218)
The proposals under consideration fell into five major categories: market-reform,
employer mandate plus Medicaid, employer choice of Medicare or private,
Medicare for all, comprehensive public plan. See, Table 11 below.
. Market-reform. Small group health insurance reform is a targeted
approach to extend insurance to the working uninsured.(219)
It proposes reforming the small group market to make coverage affordable
and easier to purchase and to then sell private health insurance to small
firms.(220)The reforms
include: requiring private insurers to make coverage available to all firms,
employees and dependents in the group, limiting pre-existing condition
waiting periods for coverage, limiting variation of premiums based on group
risk, limiting the extent to which premiums could be increased.(221)
- . Employer-Mandated Basic Coverage plus Medicaid. Similar to market-reform,
this proposal would require employers to offer coverage and to contribute
at least 75 to 80 percent toward the premium cost.(222)
In addition, Medicaid would be expanded to cover all poor persons not encompassed
under an employer policy.(223)
- . Employer Choice of Medicare or Private. The "play or pay" option would
provide employers the alternative of acquiring private health insurance
coverage for employees and dependents or contributing toward their coverage
under a public plan similar to Medicare.(224)
If a person is not covered under a private insurance plan, he or she would
automatically be covered under the public plan and assessed a premium based
on income.(225)
- . Medicare for All. This alternative would broaden the present Medicare
program to the whole population. Employers would be required to contribute
financially toward the coverage of their employees. States would also be
required to contribute current Medicaid funding for acute care benefits
to the poor.(226)
- . Comprehensive Public Plan. This option provides comprehensive health
benefits to the entire United States population through a single public
plan.(227) This plan would replace all
private health insurance.(228)
| TABLE 11: EXPANDED HEALTH INSURANCE OPTIONS(229)
Horizontal Equity. To the extent that expanded insurance coverage
would provide economic access for all uninsured, it has horizontal equity.
In essence, expanded insurance coverage treats equals (the uninsured) as
equals. Therefore, options such as employer choice of Medicare or private
insurance, Medicare for all, and comprehensive public plan, have horizontal
equity.
However, market-reform and employer-mandated plus Medicaid do not provide
for coverage for all uninsured. For instance, market-reform options do
not require the employer to contribute toward the premiums. Without employer
contributions, many employees in low-paying jobs will not be able to afford
the premiums. Furthermore, premiums may increase because of availability
of coverage to high- risk, sick individuals who had been previously excluded
by underwriting practices.(231)
Therefore, under the market-reform option almost 40 millions persons will
still be uninsured.(232)Similarly,
employer mandate only covers two-thirds of the uninsured who are in families
with a working adult. It excludes from coverage almost 7 million uninsured,
such as part-time workers and older adults who are disabled or retire early
and are not eligible for Medicare.(233)
The groups (including those in low-paying jobs and/or part- time employment)
that market-reform and employer mandate plus Medicaid will not cover would
include high numbers of African-Americans.
Vertical Equity. A system of universal insurance regardless of
coverage fails to resolve the racial difference in access between African-Americans
and European-Americans that is not related to insurance coverage. For example,
European-Americans have better access to health care even when the insurance
coverage is similar.(234)Expanding
insurance would not increase community availability of either European-American
institutions and providers or African-American institutions and providers.
Nor does expanding insurance coverage address the issues of racially disparate
treatment. In short, expanding insurance coverage does not address the
issue of institutional racism. Consequently, expanding insurance coverage
does not provide for vertical equity.
Economic Efficiency. Whether expanding insurance coverage is
economically efficient is highly debatable. Without cost controls, expanding
insurance coverage could increase health care costs drastically. Historically,
the existence of health insurance has played a significant role in increased
health care costs. This is so because the insurer's method of reimbursing
providers introduced into the health care system a "complex of irrational
economic incentives".(235)
In particular, the "fee-for-service basis"(236)system
euphemistically called "the free lunch system," has delivered medical care
without regard to cost containment, and sometimes without regard to medical
necessity. Under fee- for-service, third-party payers pay health care providers
for each discrete item of service. In 1980, 50% of active physicians were
compensated by fee-for- service; approximately 20% were salaried and the
other 30% received a mixed form of compensation.(237)
Similarly, government programs (Medicaid and Medicare) reimbursed providers
for most of their costs or charges incurred in treating covered patients.(238)Both
reimbursement forms created powerful incentives to over-utilize the health
care system.(239)In
fact, no one had a rational incentive to economize.
For example, a patient contracted for insurance through the employer
for 80% of the usual, customary, and reasonable (UCR) cost of "medically
necessary care." Therefore, the patient lacked the incentive to economize
because no matter the charges, the patient only paid 20% of the cost.(240)Because
the insurance premium was shared with the employer, the patient generally
was not directly concerned with future premium increases. Even so, her
individual health care choices did not directly influence her insurance
premium, since insurers did not typically base health care insurance premiums
on "experience rating." In this way the patient did not realize the full
financial impact of her health care treatment decisions.
Nor were hospitals and physicians motivated to economize. Because most
third- party payors guaranteed providers 80% of their customary charges,
fee-for- service or cost-based charges had an opposite and "perverse influence"
on health service delivery.(241)
Under both reimbursement systems, providers made more when they treated
more.(242) This phenomenon
had two effects. First, physicians and hospitals tended to de-emphasize
preventive care, which was not as lucrative as treatment services. Second,
providers tended to place excessive reliance on the use of medical technology
because third-party payors paid for discrete procedures, not time spent
with patients.(243)From
the patient's point of view, insurance removed the need to ration health
care dollars, creating a "moral hazard problem."(244)
And, from the insurer's point of view, a payment system that had worked
well for auto and life insurance seemed to make sense. In these ways, health
care insurance was designed and implemented on the basis of faulty assumptions
by all parties.(245)
Extending health care insurance to greater numbers of persons could result
in over-utilization unless serious cost containment measures, such as utilization
review(246) and financial
risk-shifting,(247)are
introduced into the health care system.
Neither the market-reform option nor the employer-mandated option is
likely to contain substantial cost containment provisions. Small firms
and private plans do not typically offer managed care products which provide
the mechanism for serious cost containment. While some larger employers
may offer managed care products, they represent a relatively small proportion
of the newly insured since most larger employers are already covering their
employees. There is potential for cost containment with the expansion of
Medicaid, since it would extend its tight provider payment limits to a
larger number of persons. However, those same payment limits might also
act as a deterrent to provider participation which would then limit the
actual availability of service. Therefore, expanding insurance is only
efficient if the health care system is reformed to eliminate unnecessary
medical care, reduce overpriced procedures, and improve administration.
Stigma. While expanding insurance coverage will not necessarily
stigmatize, actions taken to make it workable, that is, cost containment
efforts, might lead to stigmatization. The stigmatization may be a result
of individuals being treated differently based on the type and amount of
coverage they have. Historically, the type and extent of coverage varies
among individuals and groups, based on whether it is government or employer-based
insurance.
Even among employers, insurance varied among large employers with unions
(such as General Motors) and smaller employers without unions. Further,
regardless of size of employer, individuals employed in minimum-wage positions
often have no coverage or minimal coverage with large deductible amounts.
Government programs (such as Medicaid and Medicare) have had lower provider
payment schedules and treatment guidelines, which discourage provider participation.
In fact, many providers have refused to accept payment from policies that
either do not make full restitution or that place restriction on their
practices. Individuals who have these policies are likely to be labeled
negatively by providers and institutions. Given that many African-Americans
are employed in minimum-wage positions (or are covered by government insurance)
they are likely to be stigmatized more by providers' refusal to accept
certain policies.
Preference Satisfaction. There is no indication that a generalized
insurance program will allow for preference satisfaction for all participants.
Preference satisfaction implies the ability to exercise choice in providers
and treatment. To make expanded insurance coverage workable, patient choice
might be limited to control cost. For example, many employers may adopt
managed care plans as a mechanism of controlling cost. Managed care plans(248)
control cost by having physicians act as "gatekeepers", limiting a person's
access to certain treatment and to specialist physicians.(249)While
expanding insurance coverage in itself will not limit preference satisfaction,
the gatekeeping aspects of cost containment programs will. These attempts
to have the physician become the gatekeeper to medical care will ultimately
change the entire structure of the American health care system(250)
and not necessarily for the better. The least articulate, least educated,
least financially well- off person will have the most limits imposed by
cost containment efforts. If cost containment efforts result in injuries,
the poor and minorities will have to bear the cost of restricted access
to services. The cost containment efforts that will be associated with
expanding insurance coverage could potentially result in greater health
disparity between African-Americans and European-Americans. This is especially
true given physicians' propensity to treat patients differently based on
race.
Privacy. Expanded insurance coverage does not necessarily affect
privacy. However, as in preference satisfaction, steps taken to implement
the option may negatively affect a person's privacy. In order for governments
and third-party payers to carry out utilization review and financial risk-shifting,
they must scrutinize the treatment of individual patients. In particular,
utilization review examines appropriateness of medical services to detect
variations from the norm that point to unnecessary or inappropriate care.(251)When
the third-party payer detects variation, either it does not pay the claim
(retrospective(252)
or refuses to authorize the provision of the service (concurrent and prospective(253)Each
form(254) requires varying
degrees of information about the individual. The plan which will most invade
an individual's privacy is the one that employs prospective or concurrent
utilization review because it requires information about a current illness
for the purpose of denying care.
Political Feasibility. Almost certainly, within the next four
years some bill will be passed expanding insurance coverage. The only real
question is what shape the reform will take. As noted above, the 102nd
Congress introduced more than thirty proposals which include market-reform,
employer mandate plus Medicaid, employer choice of Medicare or private,
Medicare for all, comprehensive public plan. Given the extensive insurance
lobby, it is not likely that a comprehensive public plan or a Medicare-for-all
plan will be adopted since both those options would nearly eliminate the
role of private insurance. The market-reform option, while the least intrusive
into the current system, would also leave many individuals uncovered. Given
the pain and agony that many are undergoing to change the system, leaving
large numbers uncovered would be political suicide. The most likely reform
is some combination of employer mandate plus Medicaid and/or employer choice
of Medicare and/or private. While this would leave some individuals uncovered,
it would provide the most extensive coverage without radically changing
the health care system.
Summary. The lack of health insurance explains a significant
part of the difference in the use of health care services between African-Americans
and European-Americans. Expanding insurance coverage is certain to help
to increase the use of health care services. For example, in 1977 uninsured
African- Americans in the South saw physicians an average of 1.5 times,
while insured African-Americans saw physicians an average of 2.8 times.(255)However,
it is important to note that, while African-Americans' physician visits
almost doubled for those with insurance, the racial differential between
African- Americans and European-Americans remained steady.(256)That
is, uninsured European-Americans had 150% more visits per year than uninsured
African-Americans; insured European-Americans had 132% more visits per
year than insured African-Americans.(257)It
seems that expanded insurance coverage is a policy option which will remove
major economic barriers to health care. However, this option is not a satisfactory
replacement for removing race-related problems with access to health care.
Furthermore, it increases access at the risk of increasing health care
cost, decreasing preference satisfaction and interfering with an individual's
privacy--all of which are areas in which African-Americans will be affected
in greater proportion than European-Americans.
Ultimately, the most significant problem with expanding insurance coverage,
from the African-American perspective, is that expanding insurance coverage
does little more than provide individuals with a piece of paper that says,
in effect, that they may obtain health care, if they can find someone to
accept the coverage. Expanding coverage does nothing to ensure that a provider
in the community will furnish health care nor does it address the issues
of disparate medical treatment.
C. Targeting Health Care Services to African-Americans Targeting health care services to African-Americans would focus resources
on the specific health problems confronting them. In particular, funds
could be allocated to establish community clinics in African-American communities.
Such targeting services to specific population groups is not new and has
been implemented in other areas: Maternal-Child health, Family Planning
and Handicapped Children. Community clinics have been used to serve low
income communities.
Congress passed the Disadvantaged Minority Health Improvement Act [hereinafter
DMHIA], which was passed to improve the health status of individuals from
disadvantaged backgrounds, including racial and ethnic minorities, and
to increase the numbers of minorities in the health professions. This was
to be accomplished by establishing within the Department of Health and
Human Services an Office of Minority Health and by giving the office grant
authority. (258) The
DMIHA also established a program of primary health care services to residents
of public housing.(259)
It revived and extended the program of Centers for Excellence in Health
Professions Education for Minorities.(260)
The Act established programs of loans, scholarships, and loan repayment
for individuals from disadvantaged backgrounds who are pursuing a degree
in a health profession.(261) It
revised and extended the authority for the National Center for Health Statistics,
and it created a new program of grants for data studies on the health of
ethnic and racial minorities(262).
The DMHIA established a new program of grants for assisting communities
in educating minorities to serve as health professionals in those communities.(263)It
revised and extended the programs of Community and Migrant Health Centers(264)and
created a program of grants for improving the health status of Pacific
Islanders.(265)Furthermore,
the Congress appropriated funding specifically directed to issues relevant
to improving African-American health.
States could take steps to target services toward African-Americans.
In 1991- 92, only nineteen states had minority health entities. Seven states
established the minority health entities by statute(266)four
states established the minority health entities by executive order,(267)and
eight states established the entities by the appointed health officer.(268)However,
the budgets for these entities indicate that they may be little more than
"advisors" on minority health rather than service providers. In 1991- 1992,
only three states had budgets which exceeded $500,000(269)and
eleven states had less than $100,000.(270)
Horizontal equity. Targeting health care services to African-Americans
requires treating African-Americans differently than European-Americans
even when both have similar health problems. Thus, this proposal fails
to promote horizontal equity.
Vertical Equity. To the extent that African-Americans and European-Americans
are affected differently by health disorders, it does provide vertical
equity. For instance, more African-Americans are affected by diabetes than
European- Americans. Consequently, targeting services toward African-Americans
would be treating unequal groups unequally to promote equality.
Stigma. The very act of targeting African-Americans can result
in significant stigma. Singling out African-Americans would lead to labeling
the beneficiaries of the programs as different. This process could increase
racial polarization. Providing greater services to African-Americans could
arouse opposition from other groups who perceive their needs as great as
African- Americans.
Preference Satisfaction. Whether there would be preference satisfaction
depends on how the services are delivered. If the services are delivered
through private providers, then certainly there would be no more problems
with preference satisfaction than any of the other insurance programs.
On the other hand, if the services are delivered through programs that
employ a specific staff, there would be limited preference satisfaction
since the choice of providers for African-Americans using the services
would be limited.
Economic Efficiency. As in expanding insurance coverage, the
cost of targeting services to African-Americans is significant. The government
would need to allocate additional funds for the provision of the services.
However, to the extent that targeting services to specific population attacks
the problem directly, targeting services could be more efficient (and less
costly) than a broader approach (i.e. primary care for all).
Privacy. To the extent that African-Americans would need to be
identified as having specific health issues in order to have their health
care problems addressed, issues of privacy exist. Problems also exist if
programs would need information from African-Americans to monitor the community
health.
Political Feasibility. This choice has limited political feasibility.
Given the current deficit, Congress may have difficulty in justifying spending
limited health care resources on a narrow population group. Other groups
who view themselves as having similar or significant health problems could
be angered if their population was not given similar treatment. In this
age of racial tension and discord, in-fighting over limited resources is
undesirable.
Summary. Targeting services to African-Americans would address
some access issues and treatment disparity problems since it would require
availability of services in the African-American community. The treatment
disparity between African-Americans and European-Americans is more likely
to be addressed in this environment. However, a major drawback to targeting
service is that it does not necessarily effect change in the overall system.
Assuming that such an approach would be short term, the problems of racial
barriers to access and racially disparate treatment would continue. Furthermore,
African-Americans not served by the special programs could continue to
face those same problems. Other major drawbacks are the significant stigma
that might be associated with such programs and the political unpopularity
of targeting health care services for a specific ethnic population group.
D. Using Title VI to Eliminate Institutional Racism The Civil Rights Act of 1964 provides the legal force for desegregation
efforts in health care. Specifically, section 601 of Title VI provides:
No person in the United States, shall, on the grounds of race, color,
or national origin, be excluded from participation in, be denied the benefits
of, or be subject to discrimination under any program or activity receiving
Federal financial assistance.(272)
In short, Title VI prohibits discrimination on the basis of race, color,
or national origin. The Office of Civil Rights (OCR) is delegated the responsibility
of enforcing Title VI and the Department of Health Education and Welfare
[now Department of Health and Human Services (DHHS) and Department of Education]
issued the first interpretive regulations.(273)
Those regulations provide that:
A recipient . . . may not . . . utilize criteria or methods of administration
which have the effect of subjecting individuals to discrimination of their
race, color or national origin, or have the effect of defeating or substantially
impairing accomplishment of the objectives of the program as respect individuals
of a particular race, color, or national origin.(274)
A recipient is any public or private entity or individual that receives
federal financial assistance.(275)
Federal financial assistance includes federal money awarded through grant,
loan, or contract.(276)
In light of these two definitions, Title VI, has the potential of having
a broad range effect. Once a program(277)
has been determined to violate Title VI, the program "must take affirmative
action to over come the effects of prior discrimination."(278) While the statute does not specifically define discrimination, it specifically
requires HEW to define discrimination.(279)In
particular, Title VI regulations prohibit:
- . criteria or methods of administration which have the effect of subjecting
individuals to discrimination because of their race, color, or national
origin;(280)
- . criteria or methods of administration which have the effect of defeating
or substantially impairing accomplishment of the objectives of the program
with respect to individuals of a particular race, color, or national origin;(281)
- . Difference in quality of services because of the individual's race, color,
or national origin;(282)
- . Differences in quantity or the manner in which the benefit is provided
because of the individual's race, color, or national origin;(283)
and,
- . Locating services with the purpose or effect of excluding individuals
because of the individual's race, color, or national origin from the benefits
of the program.(284)
Title VI could be used to improve access of African-Americans to health
care services. Title VI regulations clearly prohibit policies and practices
which result in segregation within and between institutions.(285)Hospitals
and nursing homes which engage in restrictive admission practices face
discontinuation of their federal funds.(286)
Communities can use Title VI to resist major changes in health care delivery
that disadvantage African- Americans. For example, the closing of a predominantly
African-American inner- city hospital and the expansion of another hospital
serving primarily European- Americans could be attacked under Title VI.(287)Similarly,
Medicaid and Medicare cutbacks which primarily affect African-Americans
also violate Title VI.(288)
Thus, Title VI has the potential of forcing health care institutions to
evaluate their policies and practices which have a disparate impact on
African-Americans.
Title VI can also be used to correct problems of racially disparate
health care. Under Title VI, institutions must assure that the quality
and quantity of health care services offered to African-Americans are proportionate
to their need.
Horizontal Equity. Title VI focuses on assuring that African-Americans
who have been treated differently than European-Americans are assured the
same access and health care treatment. Using Title VI as a way to eliminate
institutional racism would achieve horizontal equity since it would treat
equals (sick individuals) as equals.(290)
Vertical Equity. Meeting vertical equity will depend largely on the types
of policies and practices an institution adopts as part of Title VI compliance.
Using Title VI to eliminate institutional racism in health care merely
requires that African-Americans who are sick and in need of care be given
the equal access to health care and be given appropriate medical treatment.
However, to the extent that African-Americans now have less access and
different treatment, it would require institutions to adopt policies and
practices that would assure African-Americans increased access and better
treatment. Those policies and practices might treat African-Americans and
European-Americans differently. If so, vertical equity would be met.
Stigma. Using Title VI may not remove the problem of stigma.
Whether stigma persists will depend on how the institutions respond to
the Title VI challenges and how the community responds to health care policy
changes and costs necessitated by Title VI compliance. Individuals using
any targeted services would certainly risk labeling. Title VI could generally
raise racial hostility among the European-Americans (and other groups)
that are experiencing different types of access problems. Such hostility
could result in additional stigma on African-Americans. However, to the
extent that Title VI compliance assures that no group is discriminated
against based on race, Title VI compliance would improve access and treatment
for other ethnic groups similarly situated to African-Americans.
Preference Satisfaction. Unlike "targeting services," Title VI
could have the advantage of allowing for preference satisfaction. As institutions
do away with discriminatory practices which limit access and treatment
options, individuals will have increased choice. On the other hand, unless
existing facilities are made sufficiently attractive to competent providers,
preference satisfaction still may be lacking. To some extent, it is a program's
responsibility to expend the resources necessary to assure quality of services
to the African- American community. Realistically, the courts are likely
to allow programs to balance this goal against other goals.
Economic Efficiency. If the current system is the most efficient
for a significant segment of the population, efficiency may be lost if
health care institutions reconsider their administrative policies and their
evaluations of physicians to decide the disparate impact that their institution
and policies will have on African-Americans. However, evidence indicates
that this system is not the most economically efficient. More than $200
billion are wasted each year in unnecessary care and inefficient administration.
That $200 billion is enough to assure adequate health care and changes
in the health care system to eliminate institutional racism.
Privacy. While the other options raised issues of patient privacy,
this option raises issues of provider privacy. Title VI compliance will
require evaluation of physician behavior. For example, treatment decisions
must be scrutinized by health care institutions and licensing boards to
identify and explain any racial disparity in treatment. Provider attitudinal
study may require identification of patients themselves. Even if this latter
step is eliminated, individual physician treatment choices and institutional
records will be scrutinized in ways not presently undertaken. Thus, privacy
criteria are not met.
Political Feasibility. Title VI can be enforced through the administrative
complaint process or through a private legal action. The political feasibility
of using Title VI to eliminate racism depends in part on the forum chosen.
a. Administrative
Complaint Process. The administrative compliance mechanism authorizes the federal agencies
that award federal financial assistance to take action against programs
which violate Title VI.(291)The
administrative process presents several problems. First, the victim of
discrimination must file a complaint with the Office of Civil Rights within
180 days of the challenged discrimination.(292)A
short time period is a particular handicap among the sick and individuals
who may not be aware of their rights.(293)
Unawareness of rights encompasses both ignorance of the statute and ignorance
of medical procedures appropriate for treatment of a disease. This leaves
the individual unaware both that a treatment did not meet the standard
of care and that this difference was the result of racial discrimination.
Thus, it becomes difficult to use Title VI if attorneys merely wait for
the patient to complain, since the patient may be completely unaware of
the injury and the remedy.
Second, the lack of formal participation of complainants in the administrative
process(294)leaves the
victims with little control over the remedies to be tailored. Third, the
process can be unusually long. It is not unusual for the entire process
to take over a year.(295)
Finally, if the patient later decides to sue, there is the potential that
the administrative complaint process will hold up the process of litigation.(296)Despite
these problems, an administrative complaint presents several advantages.
First, it can provide important leverage in negotiations with health facilities.(297)
Second, the Office of Civil Rights (hereinafter OCR) can command institutions
to retain racecoded statistics which will be crucial to proving discrimination.(298)
Third, OCR can collect the facts saving legal services considerable time
and expense.(299) Finally,
under the OCR guidelines, investigated institutions have the burden of
persuasion in responding to a prima facie case of discrimination.(300)This
is a significant advantage since the OCR approach to discriminatory effect
has been more procomplainant than the courts. The other approach to enforcing Title VI is through a civil suit. No complaint
with OCR is required before an individual files a private action under
Title VI. An individual can sue to enforce both the statute and its implementing
regulations.(301)One
obvious drawback to litigating Title VI is that gathering and analyzing
relevant statistics can be extremely time-consuming as well as expensive.
However, the biggest drawback to litigating Title VI is the lack of meaningful
evidentiary burdens on the defendant.
The evidentiary burden that a defendant bears depends on the categorization
of the allegations of discrimination: disparate treatment versus disproportionate
adverse impact. Disparate treatment discrimination pertains to intentional
discrimination. The plaintiff is charged with the burden of proving discriminatory
motive. Disproportionate adverse impact involves practices which may appear
racially neutral but which have a more significant negative impact on minorities.
Most of the practices involved in institutional racism (admission requirements,
Medicaid/Medicare cutbacks, hospital relocations, medical treatment disparity)
involve disproportionate adverse impact discrimination.
Disproportionate adverse impact analysis requires (1) the plaintiff
to establish a prima facie case, (2) the defendant to establish a business
justification, and (3) the plaintiff rebutting the defendant's business
justification by showing less discriminatory alternatives.(302)The
evidentiary burden placed on the defendant's establishment of a business
justification is the most significant roadblock to establishing a Title
VI violation.
The principal evidentiary problem with Title VI disproportionate adverse
impact litigations is confusion with Title VII.(303)Historically,
in Title VII cases, the defendant bore the burden of not only coming forth
with evidence of business justification but also the burden of proof.(304)
In Wards Cove, the Supreme Court eliminated the requirement that the defendant
bear the burden of proof. Under Wards Cove, a defendant need only introduce
some evidence of business justification. There is no longer a requirement
that the defendant prove business necessity, that the policy foster safety
and efficiency, or be essential to the goal of promoting safety and efficiency.(305)However,
the requirement of discriminatory intent has been rejected by the Congress
in its employment discrimination legislation.(306)
While this is an important development in employment law, it is an open
question as to whether the courts will change their focus on Title VI cases.
In the few Title VI health cases which exist, the burden of proof on
the defendant to justify a disproportionate adverse impact policy seems
to have been lessened even further. Defendants have successfully justified
a policy with disproportionate adverse impact by demonstrating that the
policy is rationally related to a legitimate need.(307)
This standard makes it difficult to challenge racist policies and practices
in the health care area. Cost containment is a legitimate goal, and courts
are likely to find that any relationship between the policy or practice
and cost containment will suffice.
It is through litigation that Title VI will be unhitched from Title
VII.(308) The federal
government has every right to impose a burden on the acceptance of taxpayer
monies. Allowing defendants to overcome the burden with a mere rationally
related justification nullifies the purpose of Title VI. Since defendants
do not have to accept federal funds they should be held to a "precise compliance
with [the] spending power" of Title VI.(309)
Courts have mistakenly turned to Title VII principles as the starting point
for fashioning evidentiary burdens in Title VI cases involving challenges
to facially neutral policies that have the effect of excluding minority
patients. Title VII regulates purely private employment decisions . . .
Title VI is a spending power statute. It does not regulate but places condition
on the expenditure of federal money.(310)
Summary. Hospitals, nursing homes, health care institutions, and health
care providers who receive federal funds should bear the burden to justify
policies which have the effect of discriminating against African-Americans.
If the courts (or the legislators) can be made to see that under Title
VI the government has every right to demand that its money be spent in
a non- discriminating way, then Title VI has the potential of being a powerful
tool to end institutional racism. Unfortunately, the combination of an
increased desire to control health costs and the political climate with
recent Reagan and Bush appointees to the federal court may mean that getting
the courts to hold health care providers to the fire may not be politically
feasible now. It remains to be seen what impact the Clinton administration
will have on courts. Nevertheless, the Title VI administrative process
and threatened litigation could be a powerful tool in getting health care
institutions to comply voluntarily.
V.
CONCLUSION
Health care institutions have a social responsibility to identify and
delineate all causes of disease and disability in a population and then
to mobilize the medical resources necessary to attack those causes.(311)Since
it has been shown that the health of African-Americans is markedly lower
than European-American, it necessarily follows that "this situation would
have to be called, in part, a racist consequence of the actions and structure
of those health institutions".(312)Getting
rid of the effects of institutional racism is a task for which European-American
institutions must accept the responsibility, along with the burden of identifying
effecting solutions. Doing nothing is an unacceptable option. It would
allow the continuation of economic and social apartheid based on race.
Reform efforts which call for expanded insurance coverage are inadequate
not only because it is possible that only a small minority of African-Americans
will continue to be uncovered; more importantly, it does nothing to relieve
racial barriers to access based on the availability of culturally relevant
services in the community or medical treatment disparities. While special
health services could be targeted to African-Americans, fiscally and politically
this alternative is very unlikely. Furthermore, it still fails to deal
with the inadequacy of the system in dealing with racism. Finally, litigators
could use Title VI to eliminate racist practices in health care delivery
and health care education. This would do little to assure economic access.
But more importantly, the courts have adopted a position which makes the
use of Title VI politically difficult. However, as the courts' composition
changes over the next several years this option may become more viable.
No single approach will adequately address the multi-faceted problem
of improving the health care status of African-Americans. It is also clear
that the health care system is undergoing enormous changes designed to
make it more just. If that reform is to include better health care for
African-Americans it will need to do more than assure economic access through
expanding insurance. It will need increased availability of providers through
Title VI and decreased treatment disparity through Title VI. Strengthening
Title VI such that it becomes politically feasible to use through both
the administrative and civil process should be the quid pro quo for accepting
cost containment restrictions. No system can be just so long as vestiges
of racism remain. Strengthening Title VI is the only mechanism available
to assure that health care in America is no longer racist.
[Racism remains a] prime cause of the unequal and racially discriminatory
provision of funds for health services; of the over-crowding of the ill-
equipped black hospitals and the underutilization of white hospitals; of
miserable housing, gross pollution, poor sanitation, and lack of health
care . . . .
[Racism] in consequence, is the underlying structure causing the dreadful
burden of excess morbidity and mortality, much of it preventable, that
is borne by the black population. These health-specific effects are superimposed
on the more general consequences of [racism] which bars the majority of
[African-american] citizens from participating in decisions on the allocation
of resources for health or other needs.
We believe that the . . . [American] health care system is, in consequence,
fundamentally flawed. Fragmentation and duplication of services . . . .
is costly and inefficient. . . .
For the majority of the black population, the whole spectrum of health
services (but most urgently, primary care) is inadequate. Entire generations
suffer through much of their life-times. . . .
Even if. . . [racism] ended tomorrow, their effects on health would
persist for years, in part because of the health consequences of the profound
poverty . . . that [racism] itself has engendered and in part because widespread
attitudes that encourage racism, elitism, sexism, a colonialist mentality,
and prejudice against the poor take time and commitment to change. . .
Clearly, . . . [America] has the ability to reduce markedly, if not
eliminate, the serious health problems that exist among the black population.
It can, if it chooses, eliminate the institutionalized system of racism
and discrimination that have made the country, for decades, a symbol of
human rights violations. The task facing. . . [us] is to continue to extend
the process that [civil rights reforms] have begun, until profound and
lasting improvements in health care . . . are a reality.(313) |